Canine Intestinal Lymphangiectasia 101

Until recently I was the administrator for the Canine Intestinal Lymphangiectasia (CIL) Support forum (http://www.savelouie.com/phpBB3).  I decided to give up that effort and change the format there to read-only.  After a couple of years of trying to jump start a community there,  I’ve recently had to admit to a couple of things:

1) There were not enough dogs diagnosed with this disease to achieve the kind of “critical mass” that’s needed to keep an online forum like that active and productive;

2) I am not all that interested in policing multiple threads for signs of user discontent and bickering in a space I’ve donated for the purpose of mutual support.

Add to this the fact that the vast majority of people who visit are just searching for information and don’t care to participate in this effort beyond the time it takes to get their dog stable (if they are lucky enough to do so) and it becomes clear that the best use of my time isn’t necessarily to keep that sort of a forum going.

However, there’s a lot of useful information there, and I don’t want it to just disappear, so I’m going to be reposting much of it here over the next few weeks.  And I’ll start today.

This is probably the single, most important post I wrote during the past two years of operating the forum.  It’s a basic primer and FAQ rolled into one, based upon the collective experiences of myself and other members there.  It’s reproduced here, virtually verbatim.  If you are unlucky enough to have a dog with CIL, this might be the most important information you ever find on the internet:

Lymphangiectasia is not a disease that responds quickly to treatment. Many of us here have seen multiple ups and downs on the road to remission. This is not a disease where you can give a pill and see instant improvement. The improvements happen slowly, and it is not uncommon to see periods of inappetence (not eating), extended diarrhea with or without blood, vomiting, and numerous other apparent setbacks while they are struggling to get stable.

There are a few very serious rules of thumb that need to be kept in mind during this recovery period, and some commonly seen issues.

1) Getting food into them is not as important as getting the intestinal inflammation under control. Controlling inflammation effectively will only happen if they are fed the correct foods for their condition. Ultra-low fat diets are critically important. If lymphangiectasia is secondary to IBD, then avoiding triggering proteins is also critical. Feeding snacks or fatty foods to entice them to eat is never the right thing to do, no matter how thin and bony they may become. Until the inflammation is controlled, nothing they eat will get to where it needs to go to provide nutrition. All you are doing by feeding fatty or favorite foods is making your dog worse. Appetite can be improved in many cases using anti-nausea drugs, like Cerenia, and acid reducing drugs, like famotidine (pepcid). Put yourself in your dog’s shoes (pads? booties?) and imagine how your your appetite would be if you were vomiting and your own intestines were swollen and inflamed. There’s a good reason your dog does not want to eat! Be patient.

1a) The early stages of this disease are critical, and what you give your dog to eat during these early days is extremely important. Mixing foods is generally not a good idea, because your dog may be sensitive to an ingredient in one food and, if fed together, you will have no idea which food is causing the problem. Even tiny amounts of the wrong foods can cause major reactions.  The early days of this disease can be a race against time, and you need to observe your dog’s reaction to every single thing that is eaten. The only way to know if your dog is tolerating a food well is to feed that, and only that, and watch what happens.

Until you have them stable, treats should be completely off the menu. Once stability is achieved you might carefully experiment with low or no fat treats (Louie gets rice crackers for treats). Bully sticks and rawhides should never be given, as they are full of fat.

2) The recovery time (time to get them stable) is often long–six months, or maybe more. Prepare for a roller coaster ride, because your dog is not going to feel better overnight and, as mentioned above, there will be ups and downs. If you are reluctant to “put your dog through” what it takes to recover, please take a moment to think about what that means. No one here can make the decision for you to euthanize your dog. Many of us whose dogs have experienced remissions have had thoughts of giving up. Maybe most of us have. But in the end, many of us realized that what we “put our dogs through” was what it took to get them back to happy, stable lives. Please factor this in as you weigh your choices.

That said, not all of our dogs will make it. Only you know what’s best for your dog. If you are seeing improvements, even small ones, consider the above. But we understand that a dog that continues to decline despite all our best efforts may be more kindly served by that final, selfless act. We will support you here no matter what your decision might be. The purpose of this forum is to give you as much information and as many tools as possible so that you will be as comfortable as you can be with the decisions you make. 

3) Whatever we all thought we knew about feeding and nutrition needs to be left at the back door. This disease is not just serious, it is fatal if not treated correctly, and the recommended diets (the ones that work) will not contain all the fashionable ingredients that we’ve come to expect in quality foods. Not to put too fine a point on it, but I’d rather have my dog alive and eating a food that contains a grain than dead on a diet of organic, grain-free foods. That’s not to suggest that those things are not good things to shoot for when feeding pets, but here we look for stability above all else, and we’ve learned not to mess around with what works, once we’ve found it. Advice about feeding that is not appropriate for this condition or that may discourage someone from feeding an appropriate prescription diet is not acceptable here.

4) If you cannot bring yourself to monitor your dog’s food intake closely and to disallow virtually all treats and chewys, your dog is not going to make it. It’s really that simple. A lot of tough love is required.

5) We respect the knowledge and expertise of the veterinary profession, but a practical reality is that most vets will never see a recognized case of lymphangiectasia, and may rely on outdated information about treatment or consultation with colleagues who are familar with old methods. Most of the literature paints a gloomy picture of prognosis, which translates into some vets not trying very hard. To make matters worse, recent evidence suggests that some of the old-school treatments that are still being recommended may actually make your dog worse. Very specifically: Arm yourself with well-researched, current information before accepting advice to treat with Medium Chain Triglycerides (MCT) or coconut oil. And don’t be afraid to educate your vet about what you learn. 

Some vets seem over-reliant on anti-inflammatory drugs and dismissive of the important role that diet plays in treatment of this disease. Ask your vet (or other professionals) how many cases she/he has treated successfully and remember that the answers you need may come from many different places. Some of us here have been advised by our vets to euthanize dogs that eventually began to thrive. Every owner who comes here needs to realize that becoming your dog’s vocal and informed advocate is an important part of caring for a lymphie dog. Vets only have so much time to invest in learning about rare diseases they may never be asked to treat again; YOU have a responsibility to read and learn and to work to educate your vet. Your vet should appreciate this diligence on your part and, if they do not, you need to find one who does.

6) Many of us have discovered that our dogs do not tolerate chicken well. Therefore it is strongly suggested that chicken or chicken based diets not be fed unless you are certain it is not contributing to your dog’s illness. This is a particular problem with the Royal Canin dry formula low-fat prescription diets, which are made with chicken. One size does not fit all, however, so if your dog is doing well on this diet, please do not change it. Their canned formulas use different proteins, and are not a concern.

I wrote this post after answering the same questions multiple times and also after observing some common but potentially dangerous newbie mistakes and anxieties recur again and again.  I hope that bringing it out here to this blog will help to keep it in the view of those who will find the information to be of value.

— Louie’s Mom

 

346 comments to Canine Intestinal Lymphangiectasia 101

  • Michele

    Thank you so much for all of the info you have researched and put into your various internet sites! My 9 yo Vizsla was recently dx with lymphangiectasia -it’a almost unheard of in that breed. I can only imagine how hard it is with a small dog like Chinese Cresteds or Yorkies where only a small change can have hugh effects. At least I have 47 lbs to work with – unfortunately, the one time the drained the lymph fluid from her abdomen, 8lbs was fluid! She’s entered the muscle wasting phase now and it’s difficult to watch. Thankfully, she seems like she feels OK most of the time. If you have come across any Vizsla owners dealing with this disease, I would love to make contact. Again, thank you for your dedication to educating and supporting owners of lymphie dogs!! You have put in a lot of hard work and time on your various websites.
    Michele and Maggie

    • Stacey

      Michelle,
      My 10 year old Vizsla was diagnosed with lymphangiectasia last week. She is on homecooked diet and Royal Canin LF canned food, subcutaneous fluids daily, B12 shots weekly, prednisone (switching to budesonide today), metronidizole, aspirin, prilosec. The symptoms have been present for about 5 weeks and just in the last few days I got about 2 pounds back on her and her demeanor is much better. Any tips on your experience appreciated.

    • My 12 year old dog Abby was just diagnosed with this after GI biopsy, having had three taps in two months and tons of labs and testing.
      The vet I’m using is a highly trained specialist at UT Vet Clinic in Knox TN and is familiar with this condition. She is currently taking Pred 5mg for three weeks to try and bring her into “remission”, started a probiotic. Feeding her Royal Canin GI low fat but she has just started to have diarrhea so I’m giving her chicken and rice for the next two days to see if that will help get it under control.
      I would appreciate any advice out there. I have decided I will not let her suffer and go down the road many of the blogs I have seen and their owners watch them waste away. I’m trying to maintain until I see she is not coming out of this and not enjoying life. I hope I have many more years. My vet is treating some patients now in their fourth year of this disease so I’m hopeful.

      Carol

      • Linda Lewellen

        So sorry…

        My Yorkie, Gabe, was diagnosed about 8 weeks ago at 6 years and 5 pounds Iis his weight. We are in Houston. He is on Flagyl, prednizone and weekly B12 for 6 weeks stabilization.

        We return next week.

        I see improvement via personality and solid stools. I have switched from Salmon, rice and holistic yogurt to flounder, rice, dried potato flakes snd stll some of the yogurt. It is hard for me to sneak in some spirulina. Gabe notices right away. I often have to begin by hand feeding or feeding another of my dogs the same thing along side him. He is really a sport. He gets positive feedback for everything..even when he pees on the floor. It is all about love. The other dogs seem to instinctively
        know Gabe is ill.

        I have backed off the chicken except as a teeny treat. I have picked up every other treat in the house.

        • Louie's Mom

          I’m so happy to hear that Gabe is starting to improve!

          Carol, I think we all understand how you feel. Sadly, these dogs often have a hard time getting weight on and keeping it on, but that does not mean they are unhappy or in any distress if the disease is in remission. It is always difficult to determine the extent of their suffering when a remission is not clear, and we are here to support you in whatever way you need, should you need it.

          There is lots of dietary advice on this site, so feel free to take it all in. My main points are always pretty much the same: strict dietary control is critically important. Follow the veterinary advice you receive and if that does not work to get things under control, there are systematic ways of tweaking the diet to find out an optimal balance of fat and/or a tolerable protein source. Steroid therapy can be very useful, even with the side effects it brings. Other immunosuppressant drugs, like cyclosporine (Atopica) can also be useful. Expect small changes and gradual improvements. The intestines are very damaged and they take time to heal.

          Many good wishes being sent your way. It sounds like Abby is under the care of a very experienced vet, so that is very good news. Keep us posted!

      • Sally's Momma

        Hi Carol,

        I wish I had some advice to provide, however, all I can offer is understanding- I lost my Sally to this horrible disease last February. She was a lab, only 7.5 years old and my best friend. We tried all of the “regularly prescribed” meds- Pred, Tylen, Vitamin B shots… you name it, we tried it… she too, was eating the GI low fat food and then I started cooking her all natural, low fat meals (I used added nutrients called “Spot’s Kitchen) and did everything I could to get some weight back on her… I used tuna, tilapia, sweet potato, rice…. but her appetite went from ravenous (because of the pred.) to very little… what caught my eye about your story was that you said you won’t let your furry baby suffer… and although it was the hardest decision of my life, as soon as Sally started falling because of her loss of muscle/strength (2 months from her first bout of diarrhea)and didn’t get up to greet me at the door anymore, I knew it was selfish of me to keep her alive… she just wasn’t responding to the treatments…. so try your very best, but if (and I’m praying they do!) the meds/treatment plans don’t work, please don’t be afraid to say “Good bye”…. I see many posts and wonder if maybe these “parents” are blinded by their love for their furry child so much that they can’t see that there just may not be the quality of life that we strive every day to provide for them. So good luck and I’m praying for you!!! xo

        • Anne's mom

          For what it’s worth,, 20/20 hindsight and such, I wish I had let my Annie go much earlier than I did. She was suffering and I was in such denial thinking I could turn things around . And I now realize she was hiding how very much she was hurting probably for my sake because that is that unconditional love our fur friends give to us. Such a precious gift.

      • linda lewellen

        Had appt. with vet and so far Gabe gained a bit and awaiting new bloodwork. For Carol, I have spoken with several breeders and clinics and chicken is NOT recommended. The ID foods are good if your dog will eat them but home cooking seems to do a good job. It doesn’t supply full nutrition but stabilizing is important and then we will meet with a dog nutritionist andalso give a blood thinner to avert any possibility of embolism caused by the other meds at this time.

        I am getting sole for Gabe. I think he eats better than we do because I am more selective about the origin of his fish than ours. Our home reeks of fish, but so far it seems to be helping. It has only been a few weeks so we are no experts but I have sought out a lot of advice. I am trying to remember that this disease is deadly and our chances are not high but we are going in fighting. If this advice helps anyone’s
        dear one, we will feel successful. We are just enjoying Gabe a day at a time during this up time. Do try the fish and we are told if something does work, don’t meddle with it. Stick with what works at your home. So far, this is something Gave is eating and with the help of the meds, seems to be providing nourishment.

        Good luck.

        Linda

        • Sunny Krom

          Hi Linda –
          Our girl Emma was diagnosed in May – we had a very rough time through August but then she turned around – she has gained 7lbs in 3 months thanks to the diet of lean ground turkey and white potato (6 CUPS a DAY – her appetite luckily is NOT affected) that we have been feeding her along with a does of Tylan and Atopica 2x day. We did the B-12 for 6 weeks and she was on two other antibiotics as well due to ibd complications – We started adding small servings of the Royal Canin wet food to her turkey last Friday – cooking for her is expensive, time consuming and a mess so her vet, who has been my partner in this journey, RELUCTANTLY agreed to let us try this – We will know for sure tomorrow after her weekly weigh in, but it appears that she has begun losing weight again – If this is the case, I will GLADLY go back to the home cooking – she is so brave and fights so hard, she deserves nothing less – Her progress gave me a false sense of security which our vet warned me about – Emma has an incurable disease that is very finicky. If we have found HER magic formula with the regime that she is on, we will stick with it no matter what the inconvenience or expense.

      • We are now 6 months into this after seeing several vets and struggling for a diagnosis. I am in it about 8k right now, little by little, crises by crises trying to maintain her. She is a little sadder looking probably because she’s not the chunky little spunky jack russell any longer and seems to know she’s ill. My other dogs sense it as well. She had a terrible cough and I took her as an emergency back to Jennifer (the WONDERFUL internal med vet). She had 65 cc drained, not really much but her labs suggested possible infection so we tried upping the Pred to the therapeutic dose of 7.5 mg over a several day period and adding Clavamox. I also give her B12 weekly and she takes Metrodiaz 1/4 tab twice a day. Pepcid did nothing. Her stomach churned and churned and she had bloody diarrhea this morning so Pred and Clavamox are stopped and she is giving me something “else”.
        I was touched by so many of your caring thoughts and prayers, those of use that go through this. I especially want to say this. Although I have spent a great deal more money than I ever thought I would on a dog, if you can help them within reason it’s the right decision. When however, Abby gets to the point that she isn’t coming out of it, seems tired of fighting or I see that she is struggling having more bad days than good, I will put her to sleep knowing she knew how much I loved her. For now, her better days exceed the bad and she wags her little stubby tail at me throughout the day. But I do see some changes and feel her slipping a little right now. If we can get her into remission that’s the best thing.I will always do the right thing however, for ABBY….including letting her go when “it’s time”. Hugs to all of you out there who have been through this heartbreak. There are no words.

        • Forgot to mention. She is on Royal Canin HP and loves it. I give her a little boiled chicken breast a few times a week as well.

        • Lula's Mom

          We spent thousands on Lula to when she was struggling. My heart and prayers go out to all of you with loved pets suffering with this disease. The wasting away of a once normal pet is so hard to deal with. All I can say is hang in there sometimes that magic diet could be around the corner. Best wishes and prayers.

        • Linda Lewellen

          Your post sounded like my heart speaking about me and my Gabe. I have 5 Yorkies all about 5 pounds each and 5 to 6 years old. Gabe is one of the 3 boys and the lover boy. The diagnosis is about 3 months old and made from a hunch, that diarrhea, then bloodwork, ultrasound, and biopsy.
          This site got me into the fast lane as Gabe has IBD as well. He is on Flagyl, Prednisone, B12, and eating white fish, rice, potato cooked into water with greek yogurt and a touch of spirulina…which Gabe hates (the spirulina).

          I cherish his better moments and so far he is doing well, but like you, my once active, prancing, super tail wagging dog mostly naps and choses to sleep on the couch rather thsn in bed with the rest of us. I treasure when he comes over to me for a rare cuddle up as we used to be like that so often. I know he is self aware and I believe so are the other 4.

          It was good to read your words because we too have spent about $6k and will make our choices on Gabe’s behalf when we perceive no joy in his life.

          Linda_harris@att.net anytime. It is a rough trip.

          Linda

          • Hi Linda. We are back at the vet today. Abby has had bloody diarrhea and now vomiting and cannot tolerate the Pred 7.5 nor the Clavamox. We are now going to try Cyclosporin and another form of Pred which centers GI problems specifically. Her protein is 1.7 and after a talk with my vet today before admitting her as she needs iv’s due to dehydration, when their level hits 1 they cannot any longer absorb or tolerate any food and it’s total IV time in hopes to get this into remission. I decided along with Jennifer my vet, her quality of life is worth more than going through anymore and she is going to assess her and see if we can help her one last time.
            This is heartbreaking as you know and I don’t agree with folks to put their emotions on their pets as much as we love them. This little dog is my best friend but as my vet pointed out, she isn’t an older child thinking, oh wow if I let go now I would miss so much, she only lives in the moment. Thoughts to remember.I am waiting on edge to see if she recovers from this in the next day or two and pray. Abby will make the decision for us if it’s her time. She knows she is sick, I can see it in her eyes and she is near me everywhere I am wanting to stay close. I will let you know.
            With hugs for yours……
            Carol

          • Linda Lewellen

            So sorry. Have you considered a second opinion? Is that a high prednisone dosage? Have you tried Flagyl and shots of B12?

            Whatever the outcome I know I will be crossing that road as well…….

            Please know that as sad as we will be we will have no guilt knowing the loving home and care we have provided. So I hope you too will take away the love and joy you have so freely given. We obviously have no real control over this horrible disease but to fight a good fight…but we’ll be glad as I hope you will be that he was in our care……..

            Linda

          • Carol Abby's mom

            Liver enzymes which were very elevated are NORMAL after only 5 days on Clavamox. No idea what caused the bloody diarrhea and vomiting though and after IV’s overnight she is home now.
            Yes, the University of TN Vet Clinic is considered one of the best in the country, the vets here are ALL specialized and people come from all over the country to get their pets treated here. It is by referral only. I’m sure we are in awesome hands and my vet has other lymphangiectasia patients as well.
            We are now doing this, titrating Pred down to 2.5,beginning a different Pred derivative called BUDESONIDE. It is cheaper getting this through a compound pharmacy where they even flavor it 9COST $53.00), otherwise it’s $80.00 for 5 days dose! We are giving Cerenia which is used for nausea and vomiting and restarting her Clavamox in two days if stools ok. Continue Metro (Flagyl). Continue B12 injections once a week. Putting her back on Royal Canin low fat GI for now and see how she does, reheck labs in two weeks and hope her protein is higher. She is bright and perky and glad to be home tonight. It is certainly a Happy Thanksgiving. We’ll take the moments for now.

          • Linda Lewellen

            Sounds wonderful. … I am copying your post for reference. I do not know the ranking of the hospital I am using which is Gulf Coast Veterinary in Houston. But it specializes in referrals only and exotic animals as well. They treat a lot of CIL…PLE diseases which is good since my usual vet has only seen 3 cases in 15 years…..

            It is good to have an internist and nutritionists who also network with other medical and teaching institutions and who are also open to holistic approaches to a still uncharted and heartbreaking disease.

            Hope you enjoyed it as a family….:-)

            Linda, Bob …Gabe, Zeke, Zoe, Sadie, and Virgil…my sweet full house.

        • Sally's Momma

          Stay strong Carol, I’m glad Abby has such a loving Momma…. you’ll know it when the time is right… sending big prayers….

      • Carol Abby's mom

        We are now home after iv fluids. Pred dose is titrating down and we are beginning Budesamide which is specific for GI and a Pred derivative. We are continuing the Flagyl (Metro), adding a nausea med and restarting Clavamox in a few days. Her liver enzymes are suddenly NORMAL and were very elevated, thanks fo the Clavamox. We are back on Royal Canin low fat GI. The team of internal med vets we see are considered to be the best in the country here at University of TN Vet Clinic so we are in the best of hands I’m positive. She is perky right now and glad to be home. Recheck labs in two weeks.

        • Abby couldn’t tolerate the Budesonide any longer and could not tolerate Clavamox either. She was seen yesterday and they withdrew 250 cc of fluid from her abd so she is breathing much better but her Albumin is down to 1.6. I figured out in the past months she cannot tolerate any form of chicken, beef, rice brown or white and although she likes sweet potato, doesn’t do well on it. We are still giving her Royal Canin low fat GI and nothing else, canned and dry. Because she is critical we hope the next few weeks will bring her back up as I’m trying her on the Pred again, 5mg per day in divided doses, Metro and Cyclysporine. She has been on Cyclosporine for now almost 4 weeks and the vet said one more week and if it isn’t helping we willl have to stop that and try another drug. We are almost out of options.
          Reading these posts breaks my heart with this disease as it seems treatment is individualized for the most part as to what meds they can tolerate. I may supplement her with some boiled tilapia just a tablespoon or so as she doesn’t like the canned food any longer. She’s hungry due to the pred and her weight is good.
          Thanks to all.

          • linda

            So heartbreaking for you. Our Gabe struggles on but is in remission for now with Flagyl, Pred., and B12 injections.

            We only feed him tilapia, swpotato, with a bit of Canola oil and Balance IT powder for nutrients. This came from a nutritionist.
            You could also use elbow macaroni. His protein went from under 1 to 3.

            Each dog and every visit is a challenge. But, you might ask about the B12 because we are told Gabe will need that for life…However
            long that may be as he is nearing 7 and it has been 8 months since official biopsy diagnosis.

            We wish you strength. We have other Yorkies and still my heart
            is so heavy for our brave boy. May your little guy find the right combination….

            Linda

  • Louie

    Thanks, Michelle. I hope what we’ve learned over the years will help as many people and CIL dogs as possible. I do hope you get your Vizsla stable and gaining back that muscle soon. The wasting that happens with this disease is very hard to watch, and when the fluid is drained it can be shocking how thin they actually are. Wishing you and your special lymphie girl all the best.

  • Anneka

    Hi, can anyone advise me. I have a husky / GS Cross and she has had this since December. She was thin before she had this and has dropped 22kg – 16.4kg and is stick thin. She refuses everything given to her and would rather starve, so what do I do? First it was Purina H/A – she turned her nose up at this, then it was Z/D which she really loved for a while and put on a little weight, them went off it and her weight plummeted. Then the vet said to eat the duck and potato D/D, but she isnt too happy with this and is avoiding it. In desperation i cooked lean turkey mince, steamed with brown rice – she ate a little for a day then walked away…..she is on every steroid she should be on and anti-inflammatories, but what can I feed her if she wont eat? No fluid yet, just stick thin, nothing left of her and getting weaker – cant jump etc anymore. :o(((((((

    • karen

      so since i only joined in august, please tell me how your dog is, because my bichon has done exactly your food , and including rd wd rclf gastro which she tends to eat if shes hungry, i found natural balance fish and potatoe and it was lower fat than most can food,

      i also cooked talapia she loves it
      but giving her 14 pills a day she wont take them in treats so im shoving them down and its upsetting
      i understand

  • Louie

    Anneka, has your vet prescribed anything for nausea or stomach pain? We had Louie on Cerenia for nausea and pepcid (famotidine) for stomach pain, and it helped keep him feeling more like eating. You may want to ask your vet about these options if you haven’t tried them already. Other than this, I am not sure what to suggest. They often go through this and it’s one of the most difficult things for us, as their caregivers, to deal with. It may just take a little while longer for her to start feeling like herself again.

  • Anneka

    @Louie, I will suggest this to him. Thanks. She went to nip me when I rubbed her tummy, so I am sure that this is it.

    Also, people are inundating me with suggestions such as aloe vera, colostrum, enzymes, probiotics, prebiotcs etc etc…..any thoughts?

  • Louie

    Oh, yes, I had lots and lots of well meaning advice, much of which would have killed Louie if I had done it. Basically the only supplements I would entertain using are very small amounts of probiotic and slippery elm. Probiotic can help restore healthier bacterium to the intestines, and slippery elm can coat the intestine and offer a bit of soothing relief. Louie has used both of those things with some degree of success.

    I’d avoid most other advice, or at the very least check with the vet before giving anything. They’re really sensitive in what they can handle.

  • Lula's Mom

    Thank you so much for posting everything you have. My dogue de bourdeaux
    Lulabelle was diagnosed with Lymphagectasia in February, and it has been a roller coaster ride thus far. She is only 3 years old, and a part of our family. We decided to do what ever was needed to get her better. Our regular vet and the specialist we have seen have given guarded prognosis for her, and I do not except that. I happened upon your support forum and I have to tell you I could not have been more grateful. Even though my heart is breaking that my sweet girl is sick my hope is building that as long as I do not give up on her I will get her through this. Thank you Louie’s mom!

  • Louie

    I hope Lulabelle is doing better. It is hard, some vets will give up on your dog without trying very hard and that’s one of the reasons I wanted to make sure to put our experiences out here, in case it helps someone else.

    • Amy Pifer

      Dear Louie’s Mom,

      Thank you for sharing all your research. My 11 yr. old Labrador, Pearl, and I feel very fortunate to have this diagnoses as I thought I was going to lose her last Mon. The first 2 tests came back neg. as far as a reason for secondary lymphangiectasia and we are waiting on 2 more (these are from TX A&M)in order to confirm primary or secondary. I was ASTONISHED to see her GOBBLE dry food. She has been on several diff. diets over the past 3 mos. TRYING to get her GI on track..She is on dry Royal Canin low fat intestinal and I HOPE she continues to GOBBLE. Her albumin was a dangerous 1.3 last Mon. She was in hosp. for 21/2 days Guarded. Her Vet did Not give up on her. I SO Hope that this road leads to recovery and to a time she can play again with her little 8 yr. old Chocolate Lab brother, Oliver. Know your site is appreciated. Hello to Louie. Pearl’s Mom

  • Louie

    Thanks, Amy. I hope Pearl will do well with treatment and get into a good remission. You are in very good hands at Texas A&M, they probably know as much about intestinal disease as anyone alive.

    Louie has always had a very good appetite, too, except for the times he was nauseated from the disease. Once his tummy started feeling better, he ate like a champ and continues to do so.

    I hope you’ll keep us posted as to how she’s doing. Wishing you both all the best.

    • Amy

      Hi Louies’s Mom,

      Wanted to update you on Pearl:

      Pearl gained 3 lbs.!!! HURRAY! Results from TX did come back low on cobalamin Fasting, 235 (range is 251 – 908). Folate fasting normal, Pancreatici Lipase Immunoreactivity normal, TLI Fasting, normal. I feel lymphangietasia is primary but we will see in time. Wanted you to know that Pearl recieved Veta-starch IV 4/24 when she was “guarded” and dexamethasone Injection. Then Prednisone 20 mgx2, twice a day along with sucralfate 3x a day and famotidine once a day. To treat the bacterial overgrowth indicated by cobalamine result, Pearl is getting 1/4 teaspon of Tylan powder 2x a day and 1000mg B12 injection once a week, for next 5 weeks. I put the powder in the canned Royal canin and make a little treat ball. She is still eating the dry Royal Canin low fat intestinal. I am Very Grateful to her Doctor for knowing what to do. She stumbles sometimes but she IS getting stronger. As of last night, the prednisone has been cut back to 11/2 tab 2x a day. Pearl says Hello to Louie. Thanks, Pearl’s mom

    • Amy

      Should have mentione…Pearl’s albumin was 1.8 yesterday!!

      Pearl’s mom

  • Louie

    Amy, that’s great news! I hope Pearl continues to do well.

    • Pearl's mom

      Pearl did not continue to respond to the prednisone. That first week was so promising only to have her lose the 3lbs. plus more the following week. Pearl was unable to walk and even stand. With help, she was released from her sick body on Thurday, 5/10, just 12 days before her 12th Birthday. As you know, I am sick with grief, but still I would never change having My Pearl.

      I want to thank you again for your site and wish you and Louie the Very Best.

      Pearl’s Mom

  • Louie

    Pearl’s mom, I am so very sorry for your loss. It is always sad to me when there is a loss. I will light a candle for Pearl tonight and for you, as well.

    Big hugs from Louie and me.

  • Lula's Mom

    I wanted to update you on Lula. We hit a low with Lula getting very weak falling and unable to walk without tripping. She was also very lethargic. Called her internist and told him what was happening. He had mentioned a new drug that he thought of trying, and I told him he needs to try this new drug now. Brought her in and test showed she was anemic and her albumin at that point was 1.6 . The steroids coupled with the aspirin were causing her to have bleeding ulcers. It was because of this anemia that she was tripping and weak. He had me take her off the azathiaprine and aspirin completely. He reduced her prednisone to 20mg once a day. We switched her food to the California Naturals Kangaroo and red lentil diet. We had been on the salmon and potato Hills prescription diet. He added a new drug called lefludemide. It is a immuno suppresant drug as well, but not a steroid. She was already taking the Atopica twice a day and he kept her on that. I wanted to note when we switched from the name brand to the generic she went down hill as well. He also changed her from pepcid ac to prilosec otc. Her prognosis remained guarded. Though everyone was praying for her they were not giving much hope. Within a week of this change her belly began to disappear and her agility began to come back. Her stools have become solid. She can go up and down stairs without falling. Her blood work had come back the anemia was gone and her protein had risen. We just tested her on week two and her albumin is at 2.5. She is skin and bones, and her muscle mass is completely gone. I have hope though with this change that she is climbing out of that hole and is fighting her way to recovery and remission. Though I cannot jump to full celebration every day I am thankful she is here and that she is not giving up she is only three years old. I would not have learned as much as I have and asked the questions I did and pushed for alternative directions had I not read it on this site and the forum so once again thank you so much!!

  • Louie

    Lula’s mom, I am so glad you were able to push for alternative treatments. I have said it many times, but I will say it again– I do not believe that the current, standard veterinary protocols of heavy reliance on steroids are sufficient and we see too many losses due to most vets being unwilling to think outside the box. One of the reasons I share our experience here is to give hope to others who are facing this very situation– giving up without trying that one last crazy-seeming thing is an option, but it’s not the only option. I believe strongly that diet plays a much larger role in recovery than most vets are willing to consider, and I believe strongly that it is Louie’s unusual diet that has kept him alive these past four years. We also had him on high doses of Atopica but I’m not familiar with the other drug Lula’s now taking.

    I hope that Lula will continue to recover. Yes, they are skin and bones after a short time, but it’s tricky and I encourage others not to judge too much by this, because seeing this can actually indicate early recovery as the fluid and bloating begins to subside. Recovering the strength and the muscle tissue takes a long time, and you will celebrate each small victory. Walking longer distances, jumping up onto something, just one day at a time. I hope Lula has a bright future ahead of her. Keep us posted on how she’s doing.

  • MyBuddy

    I was wondering if anyone could comment on this. My 9.5 year old frenchbulldog showed a drop in protein levels in January (on a routine wellness check). He does have food allergies (showed by skin breakouts). My vet suspects CIL. He does NOT show intestinal discomfort or diarrhea. I am hoping if it is CIL, I am catching it before it gets out of hand. However, since the initial drop, I put him on Honest Kitchen Zeal for a month and the overall protein stayed the same but he started losing weight and his skin broke out. I immediately switched him back to Natural Balance Bison and sweet potatoe which is what he was on and his skin was ok. I added canned bison and sweet potatoe (higher fat) and my vet placed him on fish-oil (I now no big mistake). Another month later and now while his skin is ok, his protein dropped from 4.8 to 4.3. I am looking into Addiction Food Nutri-RX (hyrolyzed soy with potatoe) to maybe alleviate potential food allergy and it is 8% fat. It’s not as low as the Royal Canin but chicken is a problem. Any advise. Without a biopsy obviously we aren’t sure what the issue is. His kidneys and liver were cleared with tests. I’m avoiding a biopsy as I just lost a frenchie due to anesthesia just a few months ago. I am hoping to use the food to diagnose and treat as if he has CIL. Also, how reliable are the stool tests (without biopsy) out of Texas to diagnose CIL? Any advise would be appreciated. I hope to get this under control before he potentially bottoms out….

  • Little Mo's Mum

    It is with great sadness that we lost little mo to this awful disease late last night – she had a complete loss of appetite but was continuing to be very ill – her protein levels were very low and her weight had dropped to 9kilos, her muscles had started to waste away – we decided that the kindest thing we could do was allow her to sleep – it was a very hard decision but we hope now she is peaceful, out of pain away from tablets, vet visits and injections and is now running free eating whatever she likes.

    I wish everyone the very best of luck and lots of love to you all – keep up the fight to save our furry friends – this website along with the support groups have been amazing and packed with lots of information and we dont know what we would have done without the help, support and information that these contain – keep up the good invaluable work.

    xxxx

    • Anna

      How long did Little Mo have this diagnosis?

      • Farley's Mum (Patricia)

        To little Mo’s mum,
        I am so sorry to hear of your loss of Mo.
        His deterioration at the end sounds a lot
        like what my dog Farley went through.
        It came up so suddenly and leaves you bereft.
        Take heart that you did all that you could
        and that Mo no longer suffers. Bless you.

  • Melissa (Rocky's mom)

    Just received a call back from the vet on Rocky’s blood test. His proteins are still low and infact the same as the last time. Rocky is weak and today I came home to finds spots of throw-up in the hall. He was given a B12 shot yesterday and I was hoping that his tests would be better. His stool is still soft but not liquid anymore. I am thankful he is still fighting. I am taking him off the Royal canin low fat diet. His vet wants him to stay on it for another two weeks. I know my baby and he needs some kind of vitamin and better protein. I am praying I am doing the right thing. Thank you for the information that you share. Thank you

  • Ann

    My dog Baily is on probiotics prednisone low fat medical IAMS low residue Gastro intestine hard food nothing working
    Tried rice chicken worked a little than stopped
    She has had many test she has passed out once her stomach is filling up with fluid I don’t know what to do
    Bailys mom ann

  • Lula's Mom

    I just wanted to give an update about Lulabelle. I read a few comments from the pet owners previous and I can so relate. I have to say that were it not for this site I would not have been as aggressive as I was pushing for alternatives than the standard fair of Royal Canin LF. Lula did not do well on it and it contains chicken by product. I believe Lula has a chicken allergy and a grain allergy. The vets tend to push the more known brands like Royal Canin, Science Diet, Iams and Eukanuba. Science diets salmon and potato was the best out of them all by ingredients, but Salmon was not a very novel protein for her. I pressed to switch her to the Kangaroo and red lentil whch is made by california naturals. I do not think you can get a more novel protein than kangaroo, though I had rabbit as my next choice if it did not work. She had been on a drug called Lefludemide up until recently. Since switching her to the Kangaroo her protein had remained steady at 2.1 for about a month. Her willingness to just eat kibble however began to wain. The vet said coupled with the anemia and her lack of desire for her food he surmised that the Kangaroo was not working and I should switch. The specialist concurred. He also said that perhaps all the meds were causing an auto immune response that was causing her anemia. Her red blood cell count was down to 12. My vet said taking her off the meds would likely result in her decline and death. He gave me a shred of hope that perhaps the anemia was due to ulcers. She had bleeding ulcers from the steroids before. My vet took her off the lefludemide, and the specialist agreed. I took her diet in my hands to some extent. I read that white potatoes were very good for dogs and one of the foods she tried had white potatoes in it. I bought talapia and baked in the oven, and made a fish/potato mash and added the kangaroo and red lentil kibble to it. The doctor gave me a sort of milk of magnesia for her stomach that I had to mix and inject down her throat with a syringe(minus the needle) it was called sucralfate. Her anemia continued, but her appetite increased she has been eating three times a day, and would love more than that. Her red blood cell count is great it was at 27 as of Thursday. She has gained 5 1/2 lbs. Her Albumin is now at 2.4, and the doctor is now saying to keep her on the diet he was advocating I switch. I was not so willing to jump this time because I believe and having had comments from Louie’s mom think the vets want results far to quickly. I am perfectly fine with letting her climb her way out of the lymphie hole slowly and I am there with her every step of the way. As far as her meds Lula is still on the atopica and the prednisone(40mg a day), and prilosec otc. I still give her the tylin powder as well. I hope this helps some other dog owners who are stuggling like I am. Thank you again Louie’s mom!!

  • Melissa (Rocky's mom)

    Well its has been a little more than a week since we have lost our son Rocky. He had not been doing so well in the days leading up to his passing. It has been very hard since he left be we know he is not in pain anymore. We thank all of you for you wisdom in this horrible disease and pray for the improved health of all your kids. I wish all of you the very best and continued support.

  • Diane (Macximillian's mom )

    I had to find some type of website for support, my Max is 6 1/2 year old Yorkie. Last year he developed these same symptoms, not knowing his diagnosis & had I known the true devastation that this causes I would of had him on a maintenance dose of prednisone. A year and 2 days to the date of last year I noticed he was not eating brought him in to vet same low labs , textbook of this disorder. Treatment immediaetley begun. However wbc 60,000. Next wbc 42,000. His tunny is so swollen , he is alert & such a fighter. M8y husband and I will fight just as hard for him. Sometimes my heart is heavy because I pray for the best for him , myself and others. I’m learning from this blog we go to the vet tomorrow. She has been right on w/ treatment. Let’s pray he makes the turn on the Immuran for a week today.

  • Bobbi

    My little DaVinci has LYMPHANGIECTASIA and has been on Tylan, prednisone and Royal Canine Low Fat food for years now. If you have never tasted Tylan you should. It is so bitter and when put over the food, I’m surprised he has ever eaten. Instead of mixing it in his food, I mix it up with his vitamins and give through a syringe. He hates it, but at least he can have his food and not worry about the bitter taste.

    I have recently had a diet made up by a vet nutritionist and have ordered the kangaroo meat with pasta along with Balance IT. At least it is a change for him, but eating is not something DaVinci does a lot of. He has finally reached 4.4 lbs for the first time in his life.

    I pray every night my little guy stays healthy.

  • karen

    Is kangaroo meat low fat. Where the heck do u get that. Im so. Scared to try new things. What made yoou choose. That. I saw a bison. And something can food. Ill try anything to get her stablized

    • Diane (Macximillian's mom )

      You can google if kanagroo meat low fat. It seems to me that Bobbi might have her dog stablized on her diet and drugs for Da Vinci. We tried chicken,turkey, eggs, filet, new york(w/0 fat). Max was on the drugs as bobbis dog. However, his wbc were 54,000. He passed away on 8-21-12.The diet we tried was Hills scientific. We also went to health food store and bought muscle milk for his pills. 32 grams of protein, 6 or 7 grams of fat.This we syringe fed him. He & we fought hard but he is in heaven

    • Lula's Mom

      If you are looking for Kangaroo meat. There are several options out there. The specialist that we took Lula to like California Naturals Kangaroo and red lentil bean. It has some other stuff in it but no grains and Lula has been on it for several months. It can take some time to see the actual results. I mix in a boiled white potato and some tilapia baked in the oven and she loves it. I tried the science diet and royal canin diets with no success. The royal canin LF has chicken in it which a common dog allergy food. We are also giving Lula atopica and prednisone still though it is getting tapered off slowly but surely. I hope that helps you with your kangaroo search. Though there are other brands with Kangaroo this one seemed to have the best combination for lymphie dogs.

  • Lula's Mom

    Forgot to mention that our vet and the specialist said when searching for a novel protein Bison is close to beef which may not be so novel. Though my vet did say that if the kangaroo did not work we would try the bison next. Bison has a lot of good stuff in it, but the Kanagroo is as novel as you can aside from perhaps the fish.

  • Louie's mom

    Kangaroo meat is indeed low fat. Venison is another possible choice. Lowfat whitefish, like tilapia or cod, is also a possibility.

    It can take quite a while to get them stable. Louie had many setbacks along the way but has been very stable for several years now. I hope you’ll get this worked out for Pearl.

  • karen

    I wonder where I can get california nat. Kang. Is that can or dry? I wasn’t clear on that. Is a week a month. A time to look for. Some change/ Can u tell me. What. Symptoms. Are positive. Pearls. Calcium. Drops. Below normal every week. They are giving her I.v. calcium. All the time. Her legs are all shaved. It breaks my heart. She ocassionally likes tialpia. She also. Will pick at white tuna in water. Did u put anything in the kangaroo. And red lentil. I tried. Mashed pot flakes. In alot of things. But she wont eat it. I. Then. Syringe food down her to get some potatoe in. Bichons are so fussy. Its so hard.

  • Kristen

    Hello all! My 9 year old Jack Russell Monty was diagnosed with lymphangiectasia earlier this year, secondary to IBD. On Azathioprine and prednisone we achieved remission for several months, then his albumin began to drop despite having normal stools. We restarted prednisone and began a low fat diet that includes royal canin LF canned + veggies + egg white and tilapia- his albumin has improved but he is so thin that I can hardly stand it 🙁 every little bone in his body is prominent… I guess I’m just feeling a little worried and defeated and I just appreciate the support from this website so much! Thank you all! @ Loui’s mom, does he still take any meds or have you beenable to discontinue meds? Thank you so much for the support!!
    Monty’s Mom

  • Liz Dempsey

    Dear Louie’s Mom,
    Thank you thank you for all of your information about this horrible disease. I can’t stress enough how grateful I am to have found your site. You have given me hope that I can have my best friend for longer.
    My Bernese mountain dog Kody (3years old) was just diagnosed three weeks ago. I started him on RC low fat with your suggestion (not my vets!-thank u)and he started to do better. However I may switch him to hills presciption ID low fat (new product) as more turkey is used instead of chicken. I suspect he has chicken issues as I gave him boiled skinless chicken breasts and it affected him-looser stools, ascites. He has been tolerating the mashed potatoe flakes mixed with water. This was a great suggestion, and gives him some satiety. I recently was able to add cooked egg whites and an all vegetable fat free protein powder from whole foods. Once I am absolutely sure he is ok with these additions I will slowly add honest kitchen preference. He is also taking a multivitamin, and extra vitamin d, and prednisone. Which probiotic do u use? I was think of buying only natural pet GI balance-it contains slippery elm and probiotics. Also they have a product called immune balance made with plant sterols-do u have an opinion on these products? Have u ever heard of seacure? Sorry for all the ?s. I would love to here from anyone else too-I need a buddy that can understand how difficult this is. This blog entry was by far the most helpful to me.

    Thank u again

    Liz Dempsey

  • Liz Dempsey

    Hi Kristen. I read your entry. Hope Monty is doing better

  • Melissa

    My 7 year old greyhound, Jack, was recently diagnosed with CIL. He had been having bouts of ‘gastritis’ over the past year, and in September at his checkup the vet wanted blood work (in advance of a needed dental). The blood work showed very low protein–3.6; and his albumin was down too (to 2). She suggested doing an ultrasound, which we did. A mass was found on his small bowel. A few days later, she did surgery to remove the mass. Biopsy showed that the mass was clogged lymphatics, and necrotic tissue, and that he had CIL.

    He has recovered well from surgery (still has the stitches, he is one week and four days from surgery), and yesterday was started on prednisolone. He is also on Hills i/d low fat food. He is eating well, and seems to feel pretty good. The prednisolone seems to be causing excessive urination–will this lessen as his body adjust?? Last night he had an accident in the house, which he RARELY does. Right now he’s getting 25 mg. of prednisolone twice daily.

    Also, his stool is so soft, and sometimes watery. This was never the case before, although he never had ‘good’ stool….always on the soft side. The vet attributes this to the surgery, and the fact that she removed a section of bowel [that the mass was attached to]. But will this improve?
    She is hoping to switch him to prednisone, which will be good because I am having a hard time finding prednisolone!

    This week’s blood work showed the protein coming up some–to 4.3–and the albumin is up to 2.3.

  • Melissa

    Jack had bloodwork again this week, and the numbers are good! His albumin is up to 3, and his total protein is 5.1! For a greyhound, those are both in the normal range!!
    His prednisolone dose will remain the same for another 2-3 weeks, as the vet wants to consult with a specialist. This is the first case of CIL she has seen “in years”, also since his poop is still unformed she doesn’t want to lessen the pred just yet.
    He will also likely be switched to prednisone after his current prednisolone is gone. That is good–easier to get and less expensive.

    Now if he would start to regain some weight…..

    • Liz Dempsey

      Hi Melissa,

      Glad Jack is doing better. 🙂 Glad you you had a way to fix it too.

      My big guy (Kody-Bernese mtn Dog)is doing better too with the new diet I started.

      Praying and keeping my fingers crossed.

      Liz

      • Melissa

        Thanks, Liz. Glad to hear your dog is improving too. The vet told me to decrease Jack’s prednisolone from 50 mg daily to 45, and to add the probiotic back into the mix. His poop is getting ever-so-slightly better, but the weight is still dropping off of him. Greyhounds are thin to begin with, so you can imagine how bad it looks when one goes from 85 pounds to 72….it is scary.
        Going to discuss using budesonide at the vet visit on November 6. It is supposed to be better tolerated by greyhounds, than pred.

  • Bennett Hagee

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  • Joanna

    Hello, my 8 year old cockapoo was diagnosed with severe IBS and Lymphangiectasia in March of this year. She had it so bad she went from 25lbs to 16lbs quickly. She has been up and down since then. We tried different diets among them were Purina HA, Royal Canine, potatoes, rice, pumpkin, cottage cheese, then rabbit, quinoa and broccoli, then the same substituting the rabbit for lump crab. She seemed to love every diet and then eventually hated all of them. Her last diet she was on was for over 3 months. She hated it most of the time but would eventually eat a bite here and there until she refused it all together a few weeks ago. Then I found this site and saw that people were having luck with the Honest Kitchen Preference diet. So after starving herself for a few days and realizing she could continue starving herself we decided to give this a try. It worked wonderfully! Her stool was amazingly firm and she seemed to really enjoy it. Unfortunately two weeks later she now hates it. My vet says we should have kept her on her quinoa, lentils and crab diet but she was not eating for two months practically. They say that is the diet she should be on forever. Does anyone think one diet actually works? I am so tired of telling the vet she wont eat and he just gives me the same story – to try tough love and she will eventually eat, but she doesn’t and meanwhile is skin and bones. Against his recommendations we tried the HK and it is so disappointing that she now hates it. Not sure what to do anymore. She is currently on 5mg Apirin twice a day, 5mg prednisone twice a day, and 2mg Leukaran pills. She has lost almost all the muscle in her back legs especially and can barely walk without tripping or falling. If you have any suggestions or know good doctors in the LA area please recommend. There is still a lot of life and hope in her eyes and if she did not look so sick you would think she was a happy little girl.

    • Lula's Mom

      I am so sorry to hear about your dog. Lula had switched between a few diets before finding some success. We did the Royal Canine LF but the dry food has chicken in it which is a common allergy item. We tried the science diet salmon and potato and the natural balance duck and sweet potato all with no success she lost her apetite with each our vet said it was because they were upsetting her tummy and making her feel lousy which was why she went from eating it to not eating it. After a lot of frustration and tears I decided to try a combination of what the vet suggested and what I thought might make the kibble more palatible. I bought California Naturals Kangaroo and red lentil bean. It is grain free which again is another potential allergy item. I boiled white potatoes and bake tilapia fish in the oven in water. I mixed them all together and she loved it. She is not over 100 pounds again (thank you, God!)she had gone down to 74 lbs at her lowest point. She is a Dogue De Bordeaux. Her last blood work put her back in the normal range. She is still taking the atopica once a day and prednisone 20mg once a day along with famotidine 20mg once a day. I hope this helps you. I thank God everyday that my Lulabelle is better. I do not like to talk about or think about that time for fear and dread of what we went through. This site helped me so much though I feel compelled to try and help when I can and post what we tried with good results. I wish you all the luck and my prayers are with you.

      Lula’s mom

      • Joanna

        Thank you for replying and for the information. We are trying a new vet and she is more sympathetic to Maddy’s issues. Unfortunately Maddy is not improving. We weaned her off the prednisone which ate up most of her muscles – she can barely walk without falling down – and kept her on 4 leukeran and switched to budesonide. She is not absorbing anything and although she is eating her honest kitchen preference diet mixed with baked tilapia, nothing is staying in her system. She is down to 13lbs and used to be 25. Right now we are considering going back to steroid injections for a week to see if this will kick start her immune system, but I’m afraid because she is much weaker now than the first time we tried this months back. What a horrible disease. Despite this Maddy is still very much with us. She is still being lovable and responds to us giving her treats etc. this of course makes it difficult for us. A little baby looking the way she does but with so much love still inside. Not sure what to try. Seems like most dogs stabilize after a while but Maddy is not 🙁 is there anything else we can do? Has anyone tried acupuncture?

        • Lula's Mom

          I did not try acupuncture for Lula. The muscle goes quickly unfortunately Lula is a mastiff and she was a very muscular dog and when she wasted to nothing it killed me. Sometimes the drugs can cause them to have bleeding ulcers in the stomach which cause them to be anemic and leads them to wobbly and fall a lot. If her gums are light and her stool is dark and may have blood in it that might explain the falling down. Do you give your dog an acid reducer like famotadine or omeperizole? Those can help the stomach. I can only say that we tried diet after diet and it was with no success till we tried the kangaroo. This disease is like an extreme food allergy and until you find something that the dog can eat and absorb they continue to decline. We found a dog food that worked it is California naturals kangaroo and red lentil bean. I started mixing it with boiled white potatoes and tilapia. We do not give Lula any treats at all. She is only allowed her kangaroo food with the potatoes and tilapia. We call it tough love and she is excepting that she cannot have anything but her food. Metronidazol can also help with loose stools and tylin powder is another thing that can help. Ask your vet about them they are prescribed. Probiotics are another thing you could try.

  • MJ

    Here’s what I did: My Maltese was diagnosed with Lymphangiectasia almost 2 years ago. At that time the IM specialist told me to change her diet to equal amounts of home cooked white turkey and white rice. She started to improve immediately. I now add Honest Kitchen Preference to her diet of turkey and rice. She’s still on a low dose of prednisone and plavix, but has been stable since her diagnosis and the diet change (knock wood.)

  • Lula's Mom

    Sorry just a quick correction she is now over a 100 pounds(106 to be exact). I did tell the vet what I was doing and proceeded with their approval.

  • Joanna (Maddy's mom)

    It is with great sadness and heartbreak that I let you all know that our little baby Maddy is no longer with us. She had been so sick in the last two weeks unable to hold her stool in and her legs were so weak that she could no longer stand on her own without help. She was skin and bones and that horrible day she no longer accepted any type of food. She was having terrible diarrhea with large amounts of blood. She had suffered for so many months, practically a year, and now it was time. My heart is completely broken, I wonder if there was anything else we could do. At the same time we realized how often Maddy was at the vet and how terrifying that in itself was for her – putting her through more was cruel. We made the toughest decision we have ever had to make. We went through so much together. She went on Thanksgiving and we were so thankful that this little angel came into our lives. We will always love you Maddy!!! For all the other parents out there going through this love your little angels and tell them everyday that you adore them. You are all great parents for doing all that you do for them in fighting this horrible disease. All the best to you all and know that they are true love. True love is worth fighting for.

  • Louie's Mom

    Joanna,

    I am heartbroken for you and so very sorry for your loss. One thing I learned when I was doing the CIL forum was that some dogs, no matter how hard we try, just don’t make it. You did everything you could for her and I’m sure she appreciated your efforts (as do we all). Sometimes we just can’t make it work, but at least we can say that we tried all we knew to try.

    (((((hugs))))) to you in your sadness. Maddy will be waiting for you at the Rainbow Bridge.

  • Julie

    Hi Laura — I just stumbled across your page as I saw a post on FB! Glad to know you are still actively getting the word out about CIL. I hope Louie is doing well and that you and your family have a blessed holiday season. Phoebe is doing great (thank goodness) and it will be two years since her diagnosis on Valentine’s day in 2013. I want to thank you for all of your support over the past couple of years! I’ll lurk around here and see what you’ve got posted! Best to you and Louie!
    — Julie

  • Louie

    Hi Julie! Great to “see” you here! I am so happy to hear that Phoebe is still doing well. Two years was supposed to be the maximum survival for this disease… you can see many of us are still thumbing our noses at that prognosis. Not enough of us, but thank goodness some of us do!

    Mainly what’s posted here is a sort of “best of” collection of experience from the old forum, plus some posts about diet and so forth. I just put up a thread today about supplements and also one for general discussion. Feel free to join in there!

    Have a very happy holiday! Laura

  • Marshall's Mommy

    I am so glad I found this site. I wasn’t sure how rare this disease was and I was feeling so lost and confused. My Marshall (Australian Shepherd) will be 2 on Feb 2nd and was diagnosed with IBD and CIL almost a month ago after a biopsy. I’m pretty sure my vet (who I’ve worked with and really like) has never had a CIL case before because she didn’t even know how to say it. Food wise, he’s been on Hills z/d, r/d and I’m currently (thanks to a friend who is a dog nutritionist) trying a raw food diet plan for Marshall. As far as meds, he’s been on metronidazole on and off, prednisone (they keep on raising the dose), pepcid (famotidine) and lasix a diuretic to help keep the fluid down).
    The first thing I noticed with Marshall (before the dx) was the fluid. He had diarrhea every now and then but it wasn’t bad. He went from 52lbs in August from when he had his regular vxxs to about 65lbs in November. He had gained about 13lbs in fluid. It was all over his body but it was in his chest and he was having a hard time breathing. When they did the biopsy after doing blood work and realizing his protein levels were low they had to drain a lot of that fluid.
    I went to the vet almost a week ago, probably the 10th time in the past 2 months and they just seem like they don’t know what to do. They said to raise his dose of prednisone (1.5 tabs bid)along with the pepcid, they wanted me to stay on the r/d and in 2 weeks if his protein levels weren’t any better they were going to start giving him other medications. They also straight up told me they were very worried about him. I cried on the way home.
    After spending a lot of sleepless nights (this night being one of them) I have realized that diet is a VERY important part of managing this disease.
    Like I said, right now I have him on Nature’s Variety: Instinct Raw Lamb formula, Trippett New Zealand Green Lamb Tripe, and Herbsmith Microflora Plus which has probiotics, prebiotics, digestive enzymes, and herbs supporting proper digestion and bowel health. I’m also giving him a little bit of pumpkin to help his upset stomach because he’s still having diarrhea (really bad) and some pedialyte to help keep him hydrated.
    He’s been on this diet for about 3 or 4 days now and the results are so mixed. At first it was just the Lamb and tripe with the microflora. He loved it and his diarrhea got better but my friend told me to give him some pumpkin and pedialyte and then his diarrhea got worse. I know it’s going to take awhile to play around with different foods but my question is, how long should I try out a certain diet before I decide it’s not working and switch to something else?

    • Stacey

      I am so sorry to hear about your Marshall. This disease is brutal. My female Vizsla was diagnosed last October and the biggest lesson I have learned is each dog responds differently to food and meds. None of the dog foods have worked for us. I cook her tilapia, egg whites, sweet potatoes ( which she won’t eat without fat free sour cream), nonfat Greek yogurt, and low fat lunch meat., And dehydrated milk with water for vitamin d. No it’s not the most balanced nutrition but its working. At least her demeanor is better and she is bouncy again. She could not tolerate cyclosporine (threw up blood) but seems to be tolerating Immuran well. She is also on Budesonide, Prilosec, b12 shots and at home subq fluids. Hang in there! If you are anywhere near San Diego I have a fantastic vet recommendation for you.

      • Marshall's Mommy

        Stacy, we live in TN so we’re not anywhere near San Diego. I called my vet yesterday to get some more metronidazole for his diarrhea and something for his nausea. When I told them that I was experimenting with his food to try and see if that would help they didn’t seem convinced but I’m not giving up. EVERYONE’s story that I’ve read about their dog having this disease always says that it was the diet that really made the difference.
        I got him some rabbit yesterday and so far so good. The nausea medicine seems to have kicked in because he finally ate all his food and I even gave him more after that. He actually had a soft stool and not just straight diarrhea. My nutritionist wants him to get settled on the raw before we start adding stuff to it like supplements. He seems to be getting there though!
        He had gotten a B12 shot before and it didn’t really seem to make a difference but he’ll be going to the vet again in a week to check his protein levels and if they aren’t any better they’ll be putting him on something else other than prednisone.

      • Norma Zawrotny

        I live in San Diego County and my Bernese Mountain Dog was just diagnosed with CIL. Who is your vet that you recommend?

        • Stacey

          Hi Norma,
          I go to Dr. Diedre Brandes at Rancho Santa Fe Veterinary Hospital off Loma Santa Fe in Solana Beach. My sweet Vizsla passed away from this terrible disease, but Dr. Brandes has other patients with CIL that stabilized. I

  • Sally's Momma

    Firstly, thanks so much to Louie’s Mom for posting so much helpful information…. I’ve read each and everyone’s stories and although the trials and tribulations break my heart (especially those who lost their beloved furry children), my heart is warmed at the same time, to see the lengths that so many of us go to, in order to save our pets and give them great lives…. My Sally is almost 8 years old and a lab mix… I’ve always joked that she had the “Lab stomach of steel” until this past December, when she started with chronic diarrhea…. after 2 weeks and the usual rice/pumpkin/hamburger mix wouldn’t work, I took her to the vet. She was put on antibiotics for possible parasites (Metro and Tylan)but there wasn’t any change after a week…then she had her blood tested, which showed super low protein levels. A low fat, high protein GI vet food (Medical) was prescribed with 25 mgs of Pred, 2x daily and Pepcid… this worked for about 4 days… then back to terrible diarrhea… she’s still on the Pred, Tylan, Pepcid and Forti Flora probiotics… my vet consulted with an Internal Med Specialist who suggested Sally be put on aspirin and Azathioprine ASAP… (this conversation actually took place tonight) and I was relieved! A diagnosis! A treatment! I must say, however, after reading everyone’s stories, I’m scared to death that Sally won’t respond, will continue to lose weight (she’s down from 70lbs to 62lbs, very thin…) she’s like many others who gets pickier every day (I’ve been mixing canned salmon or tuna with her vet food and adding egg whites to make pancakes… that’s the only thing she’ll eat these days)…. I’m worried that the steroids will cause bleeding ulcers… that maybe we should try a raw food diet… I can only hope that my best friend can fight her way back and live a happy life for another few years…. Sorry for rambling, however, it’s comforting to know that others can relate to the desperation, the fear, the frustration, the praying….

    • Lula's Mom

      I am sending you the wishes and prayers. I will say do not lose hope. Hope goes a long way. If one things does not work there is always something else you can try. This site made me ask the questions and try things my vet did not offer up, but was willing to give a try. Remember some vets do not seem very lymphie dogs.

      • Sally's Momma

        Thanks Lula’s Mom 🙂 How’s Lulabelle these days? I’m so glad to hear a success story… how long was she super ill before she stabilized and got back to a good weight/normal protein level?

        • Lula's Mom

          Lula was diagnosed in February of 2011 and she really did not stabalize till about June or July of that year. Lula is doing well last vet visit she was 117 pounds at her worse she had gotten down to 74 pounds. She is still taking the atopica once a day and prednisone once every other day. She is on an antiacid as well daily. They have been slowing reducing her meds, but the doctor said perhaps it would be better to keep her on the atopica every other day for the rest of her life. Though I would like to take her off it all I would be agreeable with that dose. She eats the California Naturals Kangaroo and red lentil bean dry dog food with white potatoes and bake tilapia still. I just thank God everyday that she is better. I remember crying everyday for my sweet girl. Reading Louie’s mom’s story really gave me the fortitude to have hope.

          • Sally's Momma

            I’m so happy for you and Lula!!!! 🙂 I know how hard it is to look at your “baby” and watch her become more ill/thinner/weaker…. I can only pray Sally does as well as Lula 🙂 She’s on her new meds (azathiaprine) and we’re hoping to see a difference soon… her protein levels have gone up a bit (were 30 at the very beginning, now 34- normal is at least 54) so I’m praying they continue to rise… I’ll have to research atopica though! Thanks!

      • Sally's Momma

        Thanks Lula’s Mom 🙂 How’s Lulabelle doing these days? How long was she super ill before she stabilized and got to a good weight/normal protein level?

  • Is egg white ok to give a dog with cil and Ibd. The vet wants to get more protein in her diet and recommended egg white. Her albumen count is at low end of normal

  • Louie's Mom

    Yep, egg white should be good.

  • Thank you for quick reply! Ella was diagnosed. A year ago.she had been doing great but has had a litter setback. She is on Rc low fat can and dry hood and has been fine. It took a lot of trail and error. She takes atopica and predict and a liver support sup. I bake thin sliced potato until crisp. Also give Baked potato once a day. This is a very hard disease. I am hoping we can keep her going for as long as possible. Ella is a 10 year old jack Russel.

  • Sorry for typos its been a long day!

  • Albert's mom

    Albert my 4 year old baby bulldog was diagnosed with CIL 3 weeks ago after the last few months of intermittent diarrhea and lots of tests. An ultrasound confirmed CIL. Albert was a strong happy playful little guy until the treatment started. He was put on a strong dose of prednisone for a week (120mg a day) then tapered down (60mg a day). The prednisone has taken every muscle from his body in 3 weeks and he can no longer walk without falling. His blood test after the first week showed his protein levels slightly up then the next week back down. He is not responding to the treatment. Last night after he fell over while over while eating, my husband and I rushed him back to the vet. We were instructed to try additional medication (atopica, famotidine and tylan powder as well as the prednisone). We have been given the Royal Canin LF food and have cut off all treats except for the occasional carrot. My heart is breaking for him. I would like to try to help him with through his diet and am more than willing to cook him food all day long forever. I have made an appointment with an internal medicine specialist who has a background in nutrition. Does anyone know if my little baby will be able to gain his strength back after he hopefully becomes stable? I am so thankful to have found this website community. Not being able to help my little baby is the worst feeling in the world.

    • Lula's Mom

      I am so sorry to hear about your bulldog. When Lulabelle was diagnosed also at 4 years old she was a very muscular dog. By the end of the month she was skin and bones. I also thought it was the prednisone it is a common side effect of the drug, but it is the disease which just robs them of everything. When you mentioned the anemia Lula was also falling down a lot she could not even go up or down stairs anymore she was to weak. Anemia can cause them to be very unstable and Lula had become anemic due to bleeding ulcers from all the meds that she was taking. I would keep an eye on her stools if there is blood in them or they are coffee ground colored let your vet know. Lula is still on the prednisone and the atopica. I really believe that diet is the key. The meds can help but finding the right food is the key to getting the dogs stable and once again being able to get the nutrients they need. This site really helped me see that and gave me hope.

      • Albert's mom

        Thank you all for responses and support. I am so happy to have found people who understand what is going on. Last night Albert took a turn for the worse. We were up all night with extremely watery diarrhea and he now is just laying on the floor without a desire to get up or to eat his breakfast. We just added the atopica yesterday and it looks like it is not agreeing with him. Has anyone else had similar experience with the Atopica?

        • Lula's Mom

          You might ask your vet about Tylin poweder and their is also metronidazole(not sure if that is how it is spelled). Both of those meds are designed to help firm the stools and are not very harsh to the system. The metronidazole is only given for a span of time, but Lula was on both of those the Tylin for much longer and it did help her. Just a thought hope it helps and good luck.

  • Louie's mom

    I am so sorry to hear of the difficulty you are having with Albert. If you are able to get him stable, his muscle tone should improve to something close to what it used to be. Please don’t think it’s the prednisone causing the muscle wasting, it is not. It is the lymphangiectasia itself that causes this, due to the protein loss. When the body cannot absorb protein, it will rob protein from the muscle tissue. Get him stable and get the protein up again, and you will see vast improvements here, though they may be slow.

    I really hope you can get him stable soon. Good luck!

    • Albert's mom

      Thank you so much for your response. I guess since the weight and muscle loss were coincident with the beginning of the treatment it seemed like the cause. Our vet is thinking that we tapered the prednisone down too soon but is reluctant to up the dosage again due to the way his body looks. She instead suggested the additional medication. In your opinion do you think this is a mistake? Is prednisone the core treatment that will help stop the process so he can become stable? Our vet also suggested marshmallows as a way to give him all of his pills. Can this food hurt his cause? Sorry for all of the questions but we feel so hopeless and sad and just want to do everything we can and in the right way.

  • Louie's mom

    Prednisone can be a big help to some of our dogs during the early days. What they need more than anything is to stop the inflammatory processes in the intestines, and the pred can help with that. Not all dogs tolerate it well, though, and I don’t have any personal experience with it, since Louie was not able to take it. I’m not a vet, so wouldn’t want to second guess that decision, though. Your vet might have other very good reasons for not wanting to increase it again.

    I don’t know about marshmallow. As a general rule, they can have very little fat. I’d look at the nutrition ingredients on the label and if they are more than 1 or 2% fat you probably don’t want to use them, or just use a very small amount. I’m lucky as Louie has a very strong appetite so I can just put his pills in a ball of food and he never even knows he’s getting them.

  • Louie's Mom

    Atopica can cause nausea and vomiting, but I’ve never seen it cause diarrhea. Once again that’s probably a symptom of his disease. I’m so sorry you are going through all this. Sometimes it takes them a while to respond to things, since their intestinal absorption is so impaired.

    It might help you to look at our story at http://savelouie.blogspot.com/2009/07/how-it-started.html to see the ups and downs we had getting him stable. We had many, many instances of watery diarrhea as part of the disease process.

    One thing you might try is a little slippery elm added to his food, and some probiotic. Those two things seem to keep Louie’s stool more firm.

    • Albert's mom

      Thank you so much for sharing your story with me. I feel so lost in what to do. I can’t stand to see him suffer this way. He is a rescue bulldog who has already been through so much pain in his life. He was really doing great until about 3 weeks ago. I guess we are in the trial and sadly, error phase of his journey. When I see him reacting so poorly to the medication I get scared but feel like it is a necessary evil. I will try the slippery elm and the probiotic. I also live in Sacramento. Do you know of any vet in the area with experience in this disease for a consult?

      • Louie's mom

        See if your vet will refer you to someone at UC Davis. That’s where Louie was diagnosed and we got pretty good care there, although much of what I’ve had to do for him has been trial and error and educated guessing. One thing to bear in mind is that it can take a while for improvements to show. It’s easy to get discouraged.

        • Albert's mom

          Thanks Louie’s mom. You are such an amazing person to provide all of this help, information and kindness to. Its so hard to watch and wait while you know they are suffering. My Albert seems to have better sprits since we started the Atopica although it seems to be pretty rough on his system. His diarreah is worse than ever. I was considering adding potato or rice to his diet but have read a lot of posts here that say do not change anything about the diet until his levels are stable, and they are not at this point. In your experience, can this be harmful to them?

          • Louie's mom

            Well, the advice I’ve always given is sort of the opposite. You need to provide reasonable time to see if a diet change is helping. A week is usually enough. If they are worsening instead, or you see no improvement after making a change, then it is time to do something else. What I always say is not to change anything once they ARE stable.

            I would try adding potato flakes, like the ones you use to make mashed potatoes. Just make sure that they are potatoes only and don’t have things like butter added. Check the label to make sure it says 0% fat. Add water to them before you add them so that they are the same consistency as mashed potatoes and then just add that to his meals and see what happens. If you don’t see improvement doing that for a day or two, I would start changing out the protein source, as well. There are a lot of good suggestions about low fat proteins on this site like tilapia and venison. Even egg white is high in protein. We use something called spirulina and feed no meat at all. Not every dog will eat that, but it’s what Louie does best with.

          • Albert's mom

            Thanks Louie’s mom. We did give the potato flakes a try in Albert’s food yesterday. Has not seemed to help him so far, I know it’s still early. He had a bad episode of watery stool last night about 3am. My husband and I are going to try Louie’s diet starting today. We are not feeling good about the Royal Canin LF dry food as he has been eating it for almost a month and there has been no improvement. We purchased the honest kitchen preference as well as the perfect form and the probiotic and will start feeding him this mixture this afternoon. We are going to try egg whites as the first form of protein to see if he can tolerate it. He also visits his vet tomorrow morning and we are hoping for some good news regarding the levels in the blood test. Thank you for all of your advice. I can not explain enough how much it is appreciated although i am sure you understand given what you went through.

  • Kim Jacoby

    After having experienced 3 French Bulldogs with this horrible disease and losing two of them, I want to share some of what I have learned that may be helpful. First of all, I was sure that there was something in my environment that contributed to all of my precious babies coming down with this, but every vet I saw was at a loss until my last dog tested postive for ghiardia (sp?)at NC State. I lived near wet lands and a part of a river and it seems my yard was infested. This parasite is very hard to detect and to get rid of (reworm after 3 weeks of intial worming). I was told that it very possibly could have been the cause.

    Second, all of my dogs were treated with prednisone, metronidozole, aziothioprin. I fed them white fish and potatoes and balance IT-canine as a supplement. The first two were seen by internal medicine specialists locally and also at Virginia Tech. I lost one in 3 months and one in 6.

    When the third dog was diagnosed and she started failing, I took her to NC State. In addition to prednisone, she was put on enalapril, clopidogrel and cyclosporine, and tylan powder. I feed her a kangaroo and sweet potatoe diet that I order from Rayne Clinical Nutrition (website on line), but I believe a vet has to order the food initially. This dog is still alive and doing well after a year and a half.

    I hope some of this information helps.
    Kim

  • Noelle DiBiase

    Hi everyone…

    This site has been amazing in helping my fiancé and I to educate ourselves about this terrible disease.

    We have a 3.5 year old Papillon and he was diagnosed with IBD and Lymphang back in February of this year. We tried him on Budesonide for two weeks and quickly saw him decline. We have since switched him to Prednisone and he’s been on it for almost 3 weeks. Like so many other dogs on this site, his food RX was the Royal Canin LF. We started him with dry kibble and have also purchased the canned version to mix as he quickly became uninterested in the basic dry. After being on the diet for over a month now, I have seen very little improvement in his stools. On a scale of 1-5, 5 being formed and solid and 1 being watery, his stools have hovered around the 2-3 area.

    We had his abdomen drained by the vet last Wednesday after just having had the specialist do it 9 days prior to that. This nearly took all the life out of him and we realized just how fragile he is and thin – anorexic to be exact. After the most recent draining, it took him 3 days to somewhat snap back. During this 3 day period he wanted NOTHING to do with his RC diet, kibble or canned. He was very picky with ground beef, chicken, rice, egg whites, cottage cheese, etc. He finally responded to some pork, although I later found that I should not have given it to him even though he did not get a loose stool or intestinal upset from it. What we did find that has worked to magically bring him back to eating is Halo canned cat food with a salmon base. Interestingly, when we fed this to him just to get him to eat, his stools went from a 2-3 to a 3-4. As soon as we started incorporating the RC LF kibble back into his diet, we noticed the stools were less formed and back to a 2-3 at best. We realize we cannot keep him on canned cat food or can we. Does anyone have a suggestion there?

    After reading all that everyone has contributed – and we are so grateful for it – we are going to try the California Natural Kangaroo with Red Lentils this weekend with potato flakes mixed in. All this time we have been sitting here thinking the Prednisone is not working when in essence it very well may be. The one time we changed his food and got away from the RC LF, we saw a POSITIVE change. I’m wondering if the chicken meal in the RC LF isn’t in itself continuing the issue.

    Any thoughts or suggestions are so welcome. At this point, we want to see the disease begin to stabilize and also see our little man gain some weight. His muscle atrophy is horrific.

    Also, in addition to the prednisone, he is on metronidazole and also lasix to keep him the fluid in his abdomen at bay.

    Thanks so much.
    Noelle and Steven

    • Lula's mom

      Hello Noelle,

      I can honestly say that many of the go to brands the vets offer have at least one or more big allergy ingredients in them. Lula was given the royal canine LF right off the bat and she quickly lost interest in it and her health continued to decline. We spent the most time on the royal canine and then went to a science diet salmon and white potato but that one proved unsuccessful. We went to natural balance duck and potato but with with every food change her health went further down and we did not have the luxury of spending tons of time before moving on to the next possible food choice. The specialist and our regular vet agreed that trying to move to a very novel protein with the simplest ingredients was out best option and the avoid many of the common allergy ingredients. No grains and chicken in any form. We went to the California naturals kangaroo and red lentil bean and at that same time we had to change her meds around because of bleeding ulcers from the steroids. We remained on the atopica and prednisone the famotadine and tylin powder. Our doctor took lula off the metronidazole because they can develop a toxicity to it after a long period of exposure. Lula was not keen on the kangaroo kibble only and though my vet said I needed to let her just eat it that way I researched online and white potatoes and tilapia had a lot of benefits and very low fat I began adding those to her diet and she began eating regularly her stools hardened and she started to turn around and though it was a slow process I could tell this time it was different and that perhaps I found the right combination to get her on the road to being stable. I believe Angel Louie’s mom is right the diet is the key. I wish you luck and don’t give up hope.

      • Stacey

        Regarding your question about the cat food–my experience thus far is stick with what works for him even if its odd.

        My 10.5 year old Vizsla was diagnosed last October and after a harrowing 6 months of various meds and foods, I agree completely that diet is the key. Each dog with this seems to respond differently with the exception that home cooked seems best. She is on azithroprine, Budesonide, Prilosec, and Tylan powder and weekly B12 injections. She couldn’t tolerate Cyclosporine. Her diet consists of home cooked Tilapia and chicken, Greek yogurt nonfat with vitamins mixed in,cottage cheese nonfat, low fat low sodium lunch meats, dry milk rehydrated with water for vitamin D. She doesn’t like potatoes anymore but will sometimes eat rice. Weruva dog food steak flavor is the most effective dog food I have found. Canned tuna works in a pinch too.

        At Christmas I thought I was going to lose her but today she has some energy back and though the muscle wasting is still obvious and diarrhea present, it’s not as bad as before. She is happy again. We haven’t had to do subcutaneous fluids in a while; at Christmas it was almost daily. Lots of ups and downs. Hang in there.

    • Stacey

      Also, back in December when she was literally wasting away in front of me, I was desperate so I bought her a rotisserie chicken. It was the only thing I could get her to eat at all–the kind in the warmer at the grocery store. I removed the skin and bones of course and hand fed her. Not an ideal diet …. But it worked. And she loved it. I am not endorsing that but if the other option is them refusing all food ….

    • Stella's Mom

      We have been struggling with Stella’s illness since early November. She has never had a protein level high enough for a surgical intestinal biopsy to prove that she has CIL or IBD, so it is just a presumptive diagnosis. Stella was started on Science Diet GI then tried Purina HA with no improvement. We then tried boiled turkey breast and white potatoes (home-cooked), but she tired of the potatoes after a few days. Her protein seemed to rebound slightly from this option though. We next tried Royal Canin LF, but her protein dropped and she went from 42 lbs to 33 lbs. Our vet said Stella’s last chance was a very low fat home-cooked diet of one cup chicken breast and three cups white rice. We noticed improvement in both her protein level and her weight after just one week! She continues to improve and the vet decreased Stella’s prednisone. In order to make this diet nutrionally balanced, our nutritionist is having us add a vitamin/mineral powder and a minimal amount of canola oil. My advice is to not give up! Our vet believes that in Stella’s case, a very low fat diet may be the answer.

  • Doe anyone know if it is common for a dog with lymphangiectasia to come home after receiving Convenia injection and seem worse (diarhea, vomit, lack of appetite, sluggish, won’t jump up)? Also, the Vet is suggesting holding off until 4 weeks to administer the next dose of steroid. I have a 5 year-old Yorkie who was diagnosed about 6 weeks ago and it has been a roller coaster. He does well on chicken, but gets tired of it. HE turns his nose away to turkey. We are ordering Ryal Canin dry food and I am already afraid he will not eat it. The vet is against tilapia, cod and kangaroo and said it could make him worse. I like my vet, but this is all so scary and every day is a mystery. Thank you all for your input, it helps me cope.
    Wilson’s mom

    • Louies Mom

      You may like your vet, but it does not sound very encouraging that he is not open to trying other low fat protein sources for your dog. Can you get your Yorkie to a veterinary Internal Medicine specialist? Or a veterinary teaching hospital? I think many of us have gotten better treatment and advice through these avenues, because these places tend to have doctors that are more up to date on the latest information.

      I don’t know about the steroids because Louie was never put on them but my understanding is that steroid treatment is usually quite aggressive at first in order to get the intestinal inflammation under control. I hope you’ll get him stable soon; time is not our friend so I’d get him to one of those places sooner rather than later. Waiting four weeks seems really out there to me, unless your dog has something like Cushing’s disease (which is what Louie also had).

    • Lula's Mom

      I have to agree with Louie’s mom. If your vet is unwilling to try low fat protein sources and is relying heavily on steroids I am not sure that is a winning combination. My vet and our specialist believed that it was a race against time to find the right food and the meds were really just a bandaid to sustain Lula till that magical food could be found. Lula had gotten to a scary weight and the most we could spend on a diet was about two weeks. Though initially we spent almost a month on the royal canin LF before taking her off it. Lula has a chicken allergy and we have avoided all poultry since learning that. I have to say as my worry began to grow that Lula was just steadily declining I began research and read and offer up my suggestions and started asking if I could try this or that. This site really showed me the way. In the end it was not one food but several mixed together that worked. I wish you luck and a good specialist.

      • I have to thank you all on this site for giving me the education and need to give attention to details, and Wilson is finally doing great under the care of a fabulous specialist. My previous Vet had told me “I’m afraid there is a point where we can’t do any more for him, and it’s downhill from here…” I could not accept that, and thankfully, after pushing and researching, I finally was referred to a knowledgeable, patient Vetinarian who is familiar with Lymphangiectasia and has had many dogs live long happy lives, which she assured me is the probable case for Wilson. I have never been so relieved. This doctor didn’t rely on injections, and was the first of two teams of Doctors to think of testing his Vitamin B level, which ended up being so low it is undetectable and needs weekly injections of B12. This doctor took hours to work with me on a creative way to get daily doses of prednisone, since he is impossible to get to take a pill. We are cushing it and putting it with his Tylan antibiotic twice daily in a teaspoon of half fat ice cream and it works!!!
        If it weren’t for reading all of your suggestions I may have settled with hearing “that’s all we can do” and who knows if Wilson would have come back from his poor dip in health. Thank you all, so much. There needs to be more education of this disease for providers so they can help us get our sick pets back to great, happy lives!

  • Rich

    Just found this site. My 6.5 yr old Berner has recently been diagnosed with GLI and it has been a bit of a ride trying to get this settled down with quite a GI bleed thrown in the mix as a result of a reaction to one of the meds she was on.
    She is recovering well from the bleed but the LI has kicked up some. My vet is tremendous and we have been to the specialists regarding diagnosis and he has been in consultation with them and dietary consultants trying to provide the best medical and dietary regimen for her. She has an ACL tear that needs repair but that can’t be dealt with til she is off prednisone for a time as the meds and ACL repair don’t mix.
    It has been disheartening to see the muscle loss particularly along her back near the spine and a reduction in her energy but here’s hoping that my prayers get answered.

    • Liz

      Hi

      I too have a berner with this awful disease. It is bad enough that this breed has so many other illness.

      My berner is allegic to chicken too- so it has been difficult to find a balance with his food

      I use Preference Honest kitchen and I give him cod fish and egg whites. and pork loin (only the loin is low fat) (for lean protein). Unfortnuately, he recently had to go back on steroids. Good luck

      • Lula's mom

        Cyclosporine is the generic form of atopica and Lulabelle my dog has been on it for over a year.
        I do not really see any side effects with her. She tried the cyclosporine, but we had
        to switch back to the atopica name brand. Hope that helps.

        • Anne's mom

          Annie has been on the atopica since she was diagnosed We have missed a few days here and there. No problems with that but when we took her off the metronidazole she didn’t do so great. Back on it and pred plus the atopica
          All of this makes her very thirsty so we are up a lot. No more sleeping thru the night but sometimes she can go a few hours without going out.
          Also makes her very hungry all the time. She eats any and everything, have already gone over that grossness here.
          The bigatopicapills are hard to ghetto go down. They stick and Annie isverycleveraboutit
          Hope thisis readable, on my little device,can’t see it even with my readers on

          • Louies Mom

            Louie did very well with the cyclosporin. I credit that drug with getting him out of the worst of the worst of times.

          • Emma's Mom

            Thanks so much – It is really good to know – trying to do the “right” thing and hard with conflicting treatment ideas – I am going to stick with one source that I trust – between the folks on this page who have personal experience and out Vet, who has treated this in the past, I feel more confident with each decision we make – Thanks again!

  • Michael Carroll

    Hey guys, please see my comments on open discussion. My yorkie Minnie, is doing well on her diet and meds for several years. Thanks Michael Carroll

  • Could you tell me the brand of rice crackers you give Louise for treats. I make potato chips in the oven for Ella (no oil). She loves them and the potato is good for the cilia and Ib. Thanks for your work and support for our sick dogs, my vet has been great about listening to the info I get from your blot.

  • Does anyone whose dog has cil and ibd treat their dog for hesrtworm and fleas? My vet prefers that we keep up the heartguard. Hope everyone has great memorial day! God bless

  • Anne's mom

    Annie is a rescue so I am assuming she is 7-8 years old, we have had her five years. Perfect health until being disgnosed with IBD with lymphangiectastia about a month ago. She is a vizsla. We have another vizsla puppy and a GSP rescue also. Feed them a raw diet.
    Annie is finally eating the prescribed Purina HA but has only gained a pound and still has loose but no longer watery stools. B12 shots weekly plus variety of other meds.
    After reading this I am considering trying the potatoes and tilapia .

    • Louies Mom

      Hi Annie’s mom. It might be worth a try, although if she’s still gaining it might be good to just add some additional carbs (the potatoes) to her existing diet first to see if she just needs a little less fat. If that helps to firm up her stool, you will know that she’s getting a bit too much fat with the HA. Good luck with her!

  • Lindi Lou

    Hi All,

    I have a 7 year old Yorkie cross who was diagnosed about 2 months ago after chronic diarrhoea, a build up of fluid in his belly and lots of blood tests. He isn’t well enough to have any biopsies, but the vet seems pretty confident about the diagnosis. After a lot of trial and error with diet, he has ended up on Purina HA and for the first time in a long time has been passing solid stools, (after 3 days on the diet) and gaining weight and body condition. The only other thing he has is a low dose of daily prenisolone. He went for a vet check recently, and lots of things are better – he is no longer anaemic and the inflammatory cells are massivly reduced, but there is only a very slight increase in his proetin levels. They are a bit better, but still frighteningly low. He was sick for quite a while before being diagnosed, and initially got worse on the other diets. What I would really like to ask is, how much of an improvement should we have been hoping for with the bloods, and if he seems to be doing better in himself should we stick with the current food – or try something different? We did try low fat foods, (RCW sensitive and the Gastrointestinal low fat)but he was really bad on these – the diarrhoea definately got worse – and his proteins fell to their lowest ever. I am happy to try a homecooked diet, but if the response to purina HA is as much as we can hope for at this stage, I don’t want to mess with something that may be working.
    Thank you everyone, I really appreciate the help and support and hope all your dogs are doing good xx

    • Louies Mom

      Hi Lindi,

      I know how you feel. We went though a period of living by test results, and it was frustrating and expensive. Eventually i got to a point at which I started going more by instinct. If he was doing well with the quality of his stool and his appetite I stopped worrying about what the bloodwork showed, and stopped having him tested so often. We’d still go in every six months or so to monitor him, but he recovered well eventually. I think it just takes the protein levels a long time to recover because it takes the intestines a long time to heal. Hopefully you will continue seeing steady progress.

      • Lindi Lou

        Thank you, we will let him tell us how he thinks he is doing then and try to worry less, given how he was it is very big progress in that respect.
        Just to say you are doing a wonderful job and to get such a fast response is so much appreciated when you are worried sick. The support is invaluable, our vet is lovely but because of the rarity of the diseas I don’t think any of them have much practical experience of the condition. It makes a huge difference to have someone to turn to who has been there.
        Thank you xx

  • Tori

    I was so thankful I found this website. I have an 8 yr old papillon, Mickey, who was diagnosed with lymphangectasia 3 yrs ago. He was put on Royal Canine LF diet and thyrozine. His protein levels and bloodwork have been ok since but he had a horrible past month. He had inflammation in his intestines and I had to give him antibiotics (after spending $$$$) at NC State vet school on another ultra sound, etc. They switched him to Hill’s Hypoallergenic diet (D/D?)
    He’s been eating it just fine…but in the past week he’s been getting heavy with fluid again. I’m worried I’m going to have to take him again to get abdominocentesis therapy to drain extra fluid. Poor thing is like a water balloon. His regular vet suggested prednisolone. I just gave him 5mg. Praying it helps. Last time this happened (in 2010) he didn’t respond well to pred.

    Prayers are appreciated and any thoughts. I have been in tears for over a month and it’s so painful to my heart and my wallet. My husband and I are still newlywed and we’ve spent so much money in the past month, I love Mickey so much though. I want to fight this disease!

    Thanks

    Tori

    • Lula's mom

      My prayers are with you and Mickey. This disease can really take you and your beloved pet on a roller coaster ride with your emotions and your pocket book. One thing I know for sure as lula struggled she knew I was doing what I could to help her. That I was fighting for her. With this disease you have to take it day to day. I feel like even still everyday I am just grateful. I wish you good luck and positive prayers.

      Lula’s mom

    • Sally's Momma

      Sending big prayers to you, Tori. It’s not easy… I can relate to the tears, the heartache and the vet bills… I lost my Sally to this horrible disease in February… she wasn’t responding to any of the foods, meds or supplements. She was my BEST friend and although I hated to say goodbye, she didn’t have any quality of life left… I was devastated but knew it was the best thing for her….I pray you won’t need to make that decision, but if you do, remind yourself you did EVERYTHING possible for him…keep praying and loving your Mickey with all your might~it’s a tough battle, one I wouldn’t wish on anyone. I’ll ask my Sally angel to watch over him from doggie heaven 😉
      xo

      • Tori (Mickey's Mom)

        Thank you for your words and thoughts. 🙂

        I have a few questions for people on this blog:

        1. How old is your dog with lymphangectasia? OR how long did they live?

        2. Does anyone have the same plan for their dog as I do for Mickey (Thyrozine twice a day, pred as needed, Hill’s D/D food)

        3. Does your dog have good bloodwork and levels but still has a belly that swells up with fluid?

        It seems like (from what I’ve been reading) that a lot of you tried or have been trying to get your dog to gain weight. My papillon Mickey is at a healthy weight but has slowly been gaining fluid weight from losing proteins(happened in 2010 and I had abdominocentesis therapy done..[they drained the fluid]). He was fine 3 years after that. I am curious if anyone has to have their dog’s fluid drained every so often?

        Thank you all! Sending love out to all of you!

        Tori (Mickey’s Mom)

        Picture of my mickey:
        http://3.bp.blogspot.com/_dnZSL4u9fp4/TRq22TtD_0I/AAAAAAAAAIA/FOnnAYtQrBY/s1600/IMG_5588.jpg

  • Tori, I pray mickey improves quickly. This is a hard fight. You are doing the best you can. God bless.

  • Tori

    Thank you ladies for your kind words. I can’t tell you relieved I am To just talk to people that are in the same situation (as unfortunate as it is).

    I agree that Mickey knows that I am fighting for him. Some days I just feel so helpless and I think that’s what’s wearing on me the most.

    This is has taken a toll on my life from all the stress. People at work just don’t understand what I’m going through. Glad that someone does though. I definitely want to support this blog and help educate others on this disease as well. It’s kind of “funny” because the more you see different specialist’s the more you know that veterinarians do not know everything. I’m fortunate enough to live in an area where we have one of the best vet schools in the country. I definitely believe they’ve helped me keep my Mickey alive and a lot healthier in the past three years. So this past month came as a shock to me. I felt like the disease was under control, then he just started to hunch over in pain from inflamed bowel.

    I pray for you all and your best furry children. Especially those who have lost one. I honestly applaud you to post and share your wisdom and loving spirits.

    Tori

    • Monty's Mom

      Dear Tori, I just wanted to offer you my prayers and support for your sweet boy Mickey- I lost my beloved Monty this past December to presumed Lymphangiectasia- I felt as you do now when Monty was in remission and then he began to decline- I felt as if we had finally beaten the disease and he was going to be well and normal again- it was the hardest thing to watch him decline and feel so helpless- I was emotionally drained and heartbroken- this website and all the comments and suggestions were so enormously helpful when no one else seemed to know what to do- I’m sending positive thoughts and prayers for you and your Mickey- God bless and keep your chin up! >3
      Sincerely, Monty’s Mom

  • Tori (Mickey's Mom)

    (Sorry I posted this twice because I meant to post it at the bottom)

    Thank you for your words and thoughts. 🙂

    I have a few questions for people on this blog:

    1. How old is your dog with lymphangectasia? OR how long did they live?

    2. Does anyone have the same plan for their dog as I do for Mickey (Thyrozine twice a day, pred as needed, Hill’s D/D food)

    3. Does your dog have good bloodwork and levels but still has a belly that swells up with fluid?

    It seems like (from what I’ve been reading) that a lot of you tried or have been trying to get your dog to gain weight. My papillon Mickey is at a healthy weight but has slowly been gaining fluid weight from losing proteins(happened in 2010 and I had abdominocentesis therapy done..[they drained the fluid]). He was fine 3 years after that. I am curious if anyone has to have their dog’s fluid drained every so often?

    Thank you all! Sending love out to all of you!

    Tori (Mickey’s Mom)

    Picture of my mickey:
    http://3.bp.blogspot.com/_dnZSL4u9fp4/TRq22TtD_0I/AAAAAAAAAIA/FOnnAYtQrBY/s1600/IMG_5588.jpg

    • Lula's mom

      Lula was diagnosed when she was three years old. She is Dogue de Bourdeaux. Originally the course of treatment was prednisone, metronidazole, tylin powder. She was also getting B12 injections here and there. They started us on the Royal Canin LF. Her health declined with all of those things going. She was 106 when she was diagnosed and she was losing weight quick. We spent over a month on the LF food and finally he had us switch to the salmon and potato made by Hills. Then we went to a specialist and he added the atopica and another drug called azathiaprine. Within a month she developed bleeding ulcers from all the meds she was taking. Our vet and the specialist we went to did not suggest draining the abdominal fluid because they said if you empty it more fluid will refill. That leaving her abdomen full slowed the process. That is what they told us so we did not drain her fluid and people would think she was pregnant when they saw her she was so swollen. The specialist was reaching the end of what he was willing to try. My vet stuck with me to the end and I will never forget that. The specialist did have me switch to the California Naturals kangaroo and red lentil bean dog food. It was with the understanding that we needed to find a novel low fat protein. We knew Lula had never had kangaroo. At the point that we stopped seeing the specialist and my vet was saying Lula was probably going to need to be put down. Her blood work was not great and she was down to 74 pounds. I kept coming back to this site and reading what people were trying and I decided to start adding boiled white potatoes to her diet. I also added baked tilapia fish. The kangaroo dog food was mixed in and she began to eat it every meal. Her meds at that point were the atopica.prednisone and tylin powder and famotadine as an antacid. It took a little while, but every week her levels were going up. I cannot tell you how many days, nights I cried, I slept on the couch because she had to go out every hour on the hour. I hope that helps you and my prayers are still with you. Just keep strong and know as your Mickey knows you are fighting for him.

      • Stacey

        All our stories sound very similar and I am soo grateful for this site. I have seen many emails lately from this site about people who are just starting this journey. Know you are not alone. Someone very smart told me “take lots of photos of your time with her now” and I am very glad I did. My Vizsla, Autumn, passed away on April 29. She had been diagnosed the previous October. I did it all–the B12 shots at home, the subQ fluids at home, the homecooked diet, the meds . . . its a brutal, unfair, terrible disease and I pray they find a cure. Soon. Hang in there and love your pups everyday.

      • Tori (Mickey's Mom)

        Lula’s mom,

        When I had Mickey drained the fluid didn’t rebuild for over 3 years.. so it seems worth it in his case..too much fluid around the lungs will affect breathing, which I am sure you know. Sounds like you had to go through SO much too. I am sorry for that.

        I thought about Kangaroo food- but now that he is on Hill’s D/D I was thinking that was the best we could do since it’s hypoallergenic?? Am I wrong?

        I’ve never heard of the B12 shots.. should I already be doing that?

        Stacey thank you for your comment too. I got my professional camera out last night (I used to be into photography before all this happened) and I started snapping some great photos of Mickey and my other dog. It made me smile and the dogs loved it. I am so grateful for you ladies and your words. I just can’t tell you how sorry I am to hear about so many that have lost their baby to this. But you all are right- we are doing or did the best we can/could.

        Love,
        Tori

  • Erin Hammond

    Our 4yr old boxer was diagnosed w/ pancreatitis in February….and a week ago was diagnosed w/ lymphangiectasia. He has lots of ulcerations in his stomach and begins to bleed out his mouth. We have had every test done and 4months later got these discouraging results. We are so overwhelmed….he is transitioning dog food now from chicken to Turkey and Potatoe…..taking predislone, zantac75, Sulcralfate and just finished amoxicillian. Our vet wants to put him on another anti-inflammatory med also. He does not have diaherra yet and his appetite is huge….Please help us w/ any info….should we be feeding him Turkey…..when he does go into remission what treats are good….keep in mind he also has pancreatitis….and should we be giving him these meds? We have him switching to Blue Buffalo Basics Turkey and Pototoe….Help save Rocky:(

  • Rich

    My heart goes out to the folks here and their dogs as they battle this terrible condition.
    Hang in , do the best you can, pray and hope; know that people here will have you in their thoughts and prayers too.
    I know it sounds trite but be sure you take the best possible care of yourself , you need to be in top form in order to help your dog.
    My dog is on prednisone, metronidazole, azathioprine, B12 shots and Omega 3 capsules.
    I added a small tin of tuna to one of her two daily meals and I increased the amount of dry food I was giving her just a bit. The IBD/LI seems to be settling a bit as she is gaining some weight slowly and the diarrhea has eased up…fingers crossed though. I hope the weight gain is not fluid build up, next blood tests should give a better picture.
    As I said before, I am very impressed with my vet; he is a fighter and I’m certainly grateful he is in my corner as we battle forward.
    All the best to all the dogs and owners.

  • Emma's Mom

    THANK YOU! We got the results of Emma’s biopsy yesterday and are just starting to get our head around this –
    Your post is extremely helpful!

  • Tori - Mickey's Mom

    I am happy to say that my Mickey’s lymphangectasia seems to be in remission. He is all a sudden super perky again and his stomach isn’t swollen with as much fluid. It’s like a miracle. I honestly can’t believe it. He is only on 1mg of thyrozine now and Hill’s D/D food.

    Here’s a recent picture of him 🙂
    http://torirowephoto.blogspot.com/

  • Tori - Mickey's Mom

    I have to say also that I prayed over him daily. I do believe in the power of prayer because it is a miracle that his disease went into remission for the 2nd time.

    -Tori

  • Emma's Mom

    HELP!
    Emma has been prescribed CYCLOSPORIN – any feedback that you can offer – sounds like it is a rather powerful drung – do benefits outweigh side effects –

  • Rich

    My Berner is recovering from a number of health issues.
    She had an ACL problem, in fact, the bloodwork in preparation for that repair tipped off the vet to a problem which ended up diagnosed as Lymphangiectasia.
    The ACL surgery was put on hold and she started a list of drugs….during her time on them she developed a serious GI bleed and I feared I might lose her but she cam though OK. The ACL problem got worse and something had to be done so the vet suggested surgery only after taking her off prednisone etc as that would mess up healing. It was a risk for a number of reasons.
    Fortunately it was the right call….the surgery was fine, she is healing well and quickly and , strangely, blood tests show her albumin is back to normal……I’m not questioning it, I am just very happy. It appears there has been a remission.
    I am keeping her on the prescription GI food, tuna, and raw fish plus B3 and B3-6-9…..and praying.

  • Rich

    The vet checked albumin levels in the blood as the dog was off all drugs except metronidazole while recovering from the ACL surgery and he is shocked and confounded that the levels are now back to normal. He can’t explain it and I am thrilled that this turn has taken place. She is starting to regain weight and muscle mass.
    I suspect this is a remission, I just hope it lasts.

  • Rich

    I hope very much that your berner has beat this disease!

  • Rich

    Thank you.
    I have found no information that sheds any light on a remission. I’ll take every day as a blessing never forgetting that it can change overnight. My prayers go out to all here.

    • Liz

      I have a Bener too. It took 2 years but now he is doing great. We are weaning him off prednisone currently. I will post soon back with all my suggestions. Dont have time now i am also a nurse so should u have questions I may be able to help.;).

      • Rich

        Thank you. Mine came off the prednisone and other drugs as the ACL surgery was in the works….and the protein shot back to normal….go figure eh? Because of the great folks here…I am supplementing her diet with some things suggested here…raw/frozen fish, rice and currently trying boiled potatoes too.
        Here’s hoping. My vet said that he had never heard of or found any information on any Berner ever having this affliction.
        We will never stop trying to beat this no matter what.
        Keep praying for all those owners who are on the front lines of the battle and those dogs who are fighting it….I sure will.
        Good luck.

  • Donna

    My precious Maltese Charlie after two weeks of constant diarrhea has been diagnosed with Lymphangiectasia one week ago. The Vet put him on Prednisone, Chlorambucil, Tylan. Also B12 shots every week for 6 weeks. As food goes she recommended Hill’s ID Low Fat Diet. After a week on Tylan and Prednisone his stool is normal and he lost the fluid around his belly and got his appetite back. He seems to be hungry all the time now. Is this normal? I started Chlorambucil three days ago (had to wait since it had to go through compounding pharmacy) with much trepidation. After all it’s a chemotherapy drug and I’m just scared to death what can this do to a small guy like Charlie? (he is 11 lbs). The Vet said it is the best combination of drugs and diet for him right now. Any thoughts or advice, please!

    • The prednisone is probably causing your baby’s appetite. Consider yourself lucky bc it sounds t
      Like your doctor knows what to do and how to treat this. The diet and meds took us months to figure out and almost cost our dog his life, until I found this site. It’s hard and you sound like uve already gotten thru so much but you love your pet and sound like u r in good hands.

      • Donna (Charlie's mom)

        Thank you Wilson for your reply. The Vet I have is a wonderful and compassionate women and it seems she knows what’s going on with him, but we also know how unpredictable this disease is. I hope that my little guy, who is a fighter won’t give up, although it’s probably too early to say. But we all have to have hope!

  • Jack's Mom

    Wow – what informative site. My 8 yr old Austrailan Cattle Dog “Jack” has just been diagnosed with this disease and I was extremely happy to find all the helpful information. Based on it all, my vet seems to be in agreement with

  • Jack's Mom

    using the same kinds of treatments. I feel that I have some knowledge now and can offer some suggestions. Thanks !

  • Linda Lewellen

    Hi. Same story. Different sweet guy. 6 year old Yorky, Gabe. We are fortunate here in Houston that he seems to have had an early diagnosis 6 weeks ago. He is being treated by Gulf Coast Medical and if you are in So. Fla.I would recommend Coral Springs Vet Hospital.

    Gabe is a loving, vibrant dog but the IBS and CIL, both diagnosed with symptoms, bloodwork, ultrasound and biopsies, have taken their toll in only 8 weeks. His chest has been drained and his prancy walk and smiling eyes are gone for a sadder look of being by himself. We have 5 small Yorkies,
    We believe his immune system has been compromised by rabies injections…..

    He seems to be respondinding to 4 weeks of Flagyl, prednisone and weekly B12 injections. I am cooking 2 meals a day of sole, boiled with water and greek yogurt. Gabe refuses any spirulina. I stated with Salmon. He prefers when I hand feed him, then he gradually eats on his own. Another dog eating next to him seems to be a good incentive..like it must really be yummy.

    He takes he meds well and gets praise for every effort, even peeing on the floor or walls. He just can’t seem to make the paper all the the but I feel he is a bit better and is cuddling with me a bit more like he used to.

    I think he knows he is ill. I feel certain the other dogs sense it the way they lick Gabe’s face. They are a close family and silly as it sounds, intell them what is going on and how brave we all will be. We spend special Gabe time outside for him to watch the birds.

    In my heart I read all of these and know where it will likely lead.
    But our Gabe will still have some happy times with us before then. It is the only way I think I can face the cooking, the costs,
    the uncertainties, the decisions we will have to make and the love I owe all the members of my Yorkie family.

    They are each special and my heart is very heavy as I watch all of them napping..

    Linda

  • Linda Lewellen

    Thanks. I cry as I write. It is hard to watch, isn’t it?

    Glad you are all here….

    Linda

  • Annie's mom

    it is so hard to read each new diagnosis here. I still miss Annie so much.
    she lived on tilapia and potato flakes those last months. wanted to share this information about tilapia FYI :http://www.draxe.com/eating-tilapia-is-worse-than-eating-bacon/

    • Linda Lewellen

      Very informative and appreciated. I live in Houston and find different fish than when I lived in NYC an NJ.

      Lateley I have actually found sole. I never hear anything on that fish. I agree whole hearted about the source of the fish affecting its nutrition…that goes for people as well with things other than fish as well. But I will certainly shop even more carefully. No wonder our beloved furry friends are mirroring the poor health we have generally put ourseves into nutrionally and medically.
      Thanks again for caring. I remember when mentioning harm from cigarettes or second hand smoke was laughable. As a COPD daughter of a heavy smoker, it sure took us a long time to change things, and that was when humans were in the cross hairs. We each have to stand up, even when our beloved companions have passed.

      Linda

  • Jamila

    Thank you all for sharing your journeys. Our nine-year old sweet and loving American Pitbull Terrier Babette was diagnosed with Lymphangiectasia and IBD on September 23 of this year. My heart breaks for her, as we’ve watched her lose weight, gain fluid in her stomach, and lose muscle mass. She is currently taking Prednisone, Cyclosporine, Azathioprine, Baytril (for a UTI), Reglan, Ondansetron, Mirtazapine and Famatodine.

    Babette is normally a very good eater, in addition to being just completely adorable. She and her sister Jasmine race to finish their food. But lately, she seems to like something for a day (or even just one meal), and then refuse it the next time. We’ve tried Wellness Super5, Wellness mixed with ground turkey or canned pumpkin, ground turkey with white rice, sweet potatoes and ground turkey, different formulations of Merrick dry food (Sweet Potato and Turkey, Sweet Potato and Chicken) mixed with these supplemental foods, Merrick canned Turkey, different organic wet foods (beef and quinoa, sweet potato and white fish), I/D, lowfat I/D, and Z/D.

    The kicker is that she is still hungry! She often comes to the kitchen begging for food with her sister. I can say with certainty that she would eat Parmesan cheese and peanut butter until the cows come home. I have been giving her peanut butter with her pills because she won’t take them any other way. But since both options are very fattening, I want to limit her exposure to them at all costs.

    Our vet is wonderful, and knows that Babette’s diet directly affects her recovery. She thinks that the best thing for her now is to stay on the Z/D, and to mix different things into it. When she eats the Z/D, her stools have been normal…I just can’t get her to eat it. Has anyone tried mixing it with other things? We’re open to any and all suggestions, and appreciate any help or ideas.

    Woof woof (in puppytalk, I think that means “thank you”),

    Babette’s Mom

    • Lula's Mom

      Lulabelle initially played that same game with her food. We went through a wide variety of foods. Trying novel protein after novel protein. Of course after trying Royal Canin LF which is chicken based. Chicken is a high allergy protein. We went from that to duck and bison and it was a toss up between rabbit and kangaroo. We eventually went with the kangaroo and it was not until we added boiled white potatoes that she really began to show interest and improve. Our vet did tell us that dogs show interest in food till it makes them not feel good and then they will not eat that same food again. Lula was fickle with several different types and even when we gave her the kangaroo kibble alone she was not that enthusiastic until we added the white potato and the tilapia fish. Hope that helps. I wish you and your pet tons of luck.

    • Louie's mom

      I’m actually surprised that any of these dogs ever eat any of the food we offer them when they are in the throes of this disease. Imagine how you feel when you have major tummy upsets!

      The only way to get them to eat is to get them healing, and that does not happen through feeding peanut butter or any other fatty food. As hard as it seems, you will have to stick to your guns and give her intestines a chance to normalize, even if that means she eats nothing at all for a day or two. It’s a terrible mistake to assume that they must eat at all costs– they must eat the right foods in order to heal.

      Pepcid can really help to calm the tummy and help stimulate the appetite. There are lots of tips on what to do and how to feed here on the site.

      Hoping for all the best for you and your pup!

  • Louie's mom

    Also, if you cannot get a pill into them, you can crush it up and give it in water through an eye dropper. That’s far better than putting it into cheese or peanut butter; even the smallest amounts of fatty food are deadly to our CIL pups.

    • Annie's mom

      yes, a tiny tiny piece of bacon made Annie so so sick!

      • Jamila

        Thanks for all of the honest feedback! I thought that the peanut butter and cheese were too fatty, but wanted desperately to give Babette her pills without pilling her. She’s been so sick that I wanted to give her a little something to bring her puppy heart some joy. I guess she’ll have to settle for endless hugs and kisses from me instead.

        We went to the vet this morning, and her blood work shows an improvement in her albumin (1.8 from 1.6 two weeks ago), and she’s gained 1/2 pound. We were given the green light to start tapering her prednisone down again. Although they are small gains, they are steps in the right direction.

        Louie’s mom, I do think that she’ll eat the Z/D if she is hungry enough. I only worry that she’ll end up taking the meds on an empty stomach. I am going to buy some potatoes first thing in the morning to see if she’ll eat it with those!

        Thanks everyone for all of your helpful suggestions. Hopefully I’ll be able to report that she ate all of her food in the morning!

  • Louie's mom

    I don’t think she’ll eat anything at all until she feels a little better. She won’t even feel hungry until then. Again, imagine how you are when you are really, really sick.

    Just keep getting the meds into her, give some pepcid if you’re worried about the empty stomach. Louie took about 2.5 mg of a pepcid for his weight of 10 lbs, which was 1/4 of a 10mg tablet. These are very crucial times and what she needs just now is for the inflammation to subside in her intestines, which is what the meds will do.

    Glad to hear that she’s doing a little better. I worry that you’re tapering back prematurely, though, if she’s still so sick that she isn’t eating. Watch her carefully and don’t hesitate to go back to the dosage that is working for her if you feel she’s getting worse instead of better.

    • Jamila

      I hope that the tapering goes well, and will not hesitate to increase the dosage if her condition doesn’t improve. She has muscle wasting from all of the prednisone…the hope is that she has been on the azathioprine long enough for it to start working, so we can taper her down from the prednisone.

      I forgot to mention in the last post that she ate all of her dinner earlier. She’s sleeping soundly with her sister now, and seems more comfortable than usual.

      I really, really, really appreciate all of the feedback and constructive responses. I’m so glad to have found this community…

  • Louie's mom

    No, she has muscle wasting because this is a protein losing disease, and when the body is not taking in the protein through the intestines that it needs, it robs the muscle tissue.

    Did your vet tell you this about the prednisone? If so, I’d think about looking for a new vet.

    • Jamila

      Our other dog (Jasmine) was also on prednisone for immune-mediated hemolytic anemia about two years ago, and had substantial muscle wasting. It does make sense that Babette is losing muscle primarily because she is losing protein.

      I read this article earlier today, which mentioned using azathoprine to minimize use of prednisone under the “medical management” paragraph: http://www.epi4dogs.com/plelymphangiectasia.htm . We started the azathioprine about ten days ago, so she should have enough in her system to try tapering her down. I do agree, however, that I’d like to see her eat more regularly before we cut her prednisone. Did Louie stay on high doses of prednisone during his recovery? Did he regain muscle mass while he was taking it? It wasn’t until we started tapering our other dog down that we noticed her regaining muscle, but she was on it for a much shorter period of time (albeit for an equally frustrating and nasty disease).

      Thanks for the link to the article. It was very helpful!

      • Louie's mom

        You’re welcome!

        We never gave Louie steroids because he had Cushing’s disease and was already manufacturing them on his own, therefore I can’t speak very well to the efficacy of steroid therapy from personal experience. I only know that many here have had some success using them. Normally what I see happening for others is a pattern of steroid use, stabilization (if lucky) and then gradual tapering to find a level that is good for maintenance. Stabilization here would mean regaining the appetite and energy, and no more fluid retention, along with significant improvements in albumin levels, and then staying there for a while.

        Yes they usually do regain their muscle mass to some degree. It is a balancing act with the steroids, of course.

        I’m glad the article was useful and I hope you’ll start to see some major improvements soon!

        • Hammer's Dad

          My 7 yr old weimaraner was recently diagnosed with CIL. After eating a large portion of a leather couch, they had to do a gastronomy to remove the material. The Vet said that he noticed abnormalities in the small intestine, so he did a biopsy. He also said that Hammer’s protein levels were a bit low. Here is my issue:
          He said that he has diagnosed this several times, yet he has only been practicing for a few years. It’s been so long, that I can’t remember the last time Hammer had diarrhea, or vomited. He has not shown any symptoms. No fluid in the abdomen, nothing! Yet, the vet has not been the least bit positive about the situation. I know the situation isn’t ideal, but it’s almost like he is trying to sell me on the worst case senario. With no symptoms, he wants to start pumping him full of steroids and a bunch of other meds. He says that Hammer has between 6 months and 2 years to live. Do you have any insight to offer? Also, i see some references of specialty hospitals and places that are experienced in treating CIL. Can you suggest a place for me to take Hammer for a second opinion?

  • Louie's mom

    http://www.veterinarypartner.com/Content.plx?P=A&A=1381&S=0&EVetID=3001459

    Fifth paragraph down. This is very important to understand, because the very last thing we need to be doing is blaming the medications for symptoms of the disease and then stopping them prematurely.

    If your vet is unaware of this, you might print out that article, as well as some of the others linked on the site.

  • Louie's mom

    Sorry for continuing to come back here posting . I also wanted to mention that the recommendations in that article about medium chain triglycerides are something I don’t agree with; they were widely held beliefs once upon a time, but more recent research has discredited the theory they were based on. So I would not rush out and buy those (I did, once upon a time, and it made Louie sick).

    • Jamila

      Please do not apologize for giving me advice. I’m willing to do what it takes if it means saving our sweet girl! The article that you sent makes perfect sense (although I haven’t seen anything really positive about MCTs, either), and gives me great fodder for questions to my vet.

      The information that I’ve read, and that you’ve shared tonight, on this site has been incredibly informative and helpful. Don’t apologize…I can’t thank you enough!

      No more peanut butter or cheese for Babette, that’s for sure! She’ll thank us for it later!

  • wendy goss

    Hi, My 18 month old husky was just diagnosed 3 weeks ago with moderate lymphocyic plasmacytic enteritis & lymphangectasia. I have started her on the recommended hills w/d low fat diet along with Azathioprine. Skye is now seeing an internist who made the diagnosis after doing an upper GI. Since all this, skye has lost another pound. The internist had told me “try not to worry, as far as diseases go, this is not a bad one. With good follow up she should be fine”. My question is, evrrything I have read about lymphangectasia is that this disease is a bad and serious one? I am very worried and confused, my dog is SO very thin…

    Looking for help,
    Wendy

  • Wendy goss

    The ciliis a tough disease. My dog (Ella) had cil-ibd. It took a couple months to diagnose, she had exploratory / biopsy. After that we fryer prescription foods, different mere until we hit on what worked to stop diahrea, low protein Etc. Rc low fat, Potato,prednesone,cyclosplorine, eggwhiites for lowfat protein. This worked for almost 2 years. Remember fat is very bad for dogs with cil.

  • wendy (skyes mom)

    Thanks for the reply Ella’s mom. Skye should be 55-60 lbs but she is now down to 41 & every bone in her body is showing. Just receiving the diagnosis there are still so many things I dont understand. Do to skye’s urinary incontinence she cant take prednisone. Is what skye has, what all the dogs here suffer from? Does anyone have advice on how I can get skye to stop losing weight? it seems so far that hills w/d isnt working since she has lost weight while eating it. Just being able to talk to others going thru this heartache is a big help.
    Thanks,
    Wendy

    • Sunny Krom

      I am so very sorry for you and Skye Wendy –
      The one thing that I have learned is that every case seems to be different. There are some things that absolutely seem to work for all dogs, and then there are some that are unique – I will share with you our experience, but please know that this is just what has worked for Emma – I would be happy to talk to you about any questions or concerns you have – I know how horrible this disease is – we are lucky that Emma has entered into a remission, but know that it is simply a remission and not something that is a cure -Emma suffered from UTI’s as a result of persistent diarrhea. That did clear up as soon as we were able to get her bowels regulated – What worked for us is ground turkey and white potato – That seems to be the magic combo for Emma – I tried to switch to Royal Canin a few weeks ago and she immediately lost a lb. Despite the hassle, we have decided to continue to make her food as it what has kept her stable and gaining weight. When she was first diagnosed, her regime included, Tylan Powder 2x a day, Atopica 2x day, Carafate (Sucralfate) 1GM
      Give 1/4 tablet by mouth three times a day for 2 months. Give 1 hour prior or 2 hours after food or other medications. Clavamox 125 mg, Give one tablet twice a day She has also taken, Metacam, Metronidazole and Simplecef for various issue that she has had –

  • Wendy (skyes mom)

    There is a lot of trial and error in finding the right combo. For Ella the pred really helped. She did get utis’ every so often. The egg whites helped her gain weight and improve protein count. Her gut was in pretty bad shape, probably. Was lucky she made it to the 2 yr mark. Try potatoes. I baked them in microwave and also made chips in oven. Sliced very thin, no oil on parchment paper until dehydrated. The chips worked as a treat. Sunny is right it is different for a lot of the pups. This websight helped so much. I let my vet know about info here and she would consult a specialist friend togive ok to use whatever. My thoughts are with you!

  • wendy (skyes mom)

    Thank u ella’s mom & sunny for ur replies! This has been a very confusing time for me…tho I finally have answers. Skye is only 18 months old & has had problems since I first got her at the age of 4 months. From day one skye had diarrhea, stool sample tested positive for coccidia, so I thought ok treat this & she will get better. Well she still had diarrhea 12-15 times a day, so another sample this time sent for PCR testing for viral diseases..comes back positive for corona virus antigen. Medication would help short term,but her stools remained soft & would go 5-7 times a day. Finally sent to specialist, did ultra sound & endoscopic evaluation with biopsy.
    Now that I know what she has,it leaves me with more questions & alot of concern. Being she is so young she hasnt really developed fully, she looks like a tall very skinny (every bone sticks out) puppy due to never developing any muscles.
    Skye does seem a little different than most of the dogs here because most of the time her stools are firm, she just goes alot, on the low end 5 high end..7 times a day. Not saying skye doesnt have diarrhea but only if she doesnt follow her very strict diet. Her appetite is very good, infact she always seems hungry, just keeps losing weight.
    Thank you all for “listening”, all this new information and watching my girl waste away…been a very scary time…nice to be able to talk to people who sadly understand how I feel

  • Rich

    Well my Berner’s remission ended with a bang.
    She recovered from the GI bleed,came through her ACL surgery while off pred, azo etc and did very well,her protein numbers actually rose to normal.
    That ended this month. I took her to physio to help with the recovery from the surgery and she was doing well then started to show signs of pain and she eventually started getting picky about eating and stopped , only eating a bit sporadically.
    She had her regular blood test and the protein numbers had fallen off a cliff. Down to 15.
    The vet put her back on pred…75 mg daily and Leukeran which is a very potent med that I have to handle only with rubber gloves on. It comes in a storage bag with a bio-hazard warning symbol. It can cause cancer in humans if I understand correctly. I have increased the amount of fish in her diet to a can of tuna daily (rinsed) plus uncooked fish fillets along with fish oil,Omega 3,6,9 , and Krill capsules…..all withy her special kibble. The pred has upped her appetite I think so at least we are getting food into her…the question is – how much will it up her blood protein?
    Ah well….hanging in here and doing all I can.
    I hope things turn around for your folks.

    • Carol Abby's mom

      OMG. As a medical professional when I read your vet started Leukeran my first question is WHY? This is not a cancer!??? I would seek a better qualified vet, respectfully.

  • Rich

    I forgot to mention, I also giver her a good helping of boiled potato and cooked eggwhite each feeding as well.

  • Wendy and rich, yup hang in there. Lots of ups and downs but when the meds work it is so great. I almost would forget Ella was sick. Got to stay on task, make sure other people understand that the pups can’t have other food and treats. Best wishes!

  • wendy (skyes mom)

    I would like to again thanks everyone for there support & information. Skye had her weekly weigh in and for the first time in a long time she actually gained weight, only a 1/2 a pound, I know its a very small “victory”, but at this point ill take it!
    I would like to wish everyone & their precious dogs a happy Thanksgiving!
    Wendy

  • Sloane

    My little girl’s pathology came back today and lymphangiectasia was confirmed. Olive Anne is a 9 year old maltese/yorkie mix.

    I was so relieved that she didn’t have lymphoma, that I considered anything else a more favorable diagnosis. I’m researching a lot and am very thankful for this blog, and am now aware that there may be worse things than cancer.

    Olive Anne is recovering from her exploratory/biopsy procedure. It will be a week on Friday. She has not started pred, as we wanted to rule out lymphoma before beginning steroid therapy. She started Royal Canin LF tonight and ate it with gusto. From reading the posts, I realize this may be temporary.

    She is on metronidazole, fort-flora (pro-biotic) and is finishing a round of antibiotics she began for treatment of a UTI.

    She feels so much better than she did before surgery. Olive was sick for 2 weeks from the onset of noticeable symptoms to actual diagnosis. She’s been eating a GI diet (Hill’s E/N) since surgery. She’s almost back to herself, except for the diarrhea. She’s engaged and bright.

    There is so much information to digest. I don’t really have a question right now, I’m just happy to know there’s a community for this and am thankful for your individual stories and willingness to share.

    • I am sorry to hear you are faced with this diagnosis and yet I want to tell you that other than you maintaining a sense of hope, the most important thing is you have a Vet that specializes in this disease and has a history that is positive and is knowledgeable of this disease. If it weren’t for this website and several people on here telling me to find a specialist, we would have lost our Wilson who was diagnosed last spring, not eating, thousands of $$$ for a week of surgical recovery and double IV fluids and albumin, as his was zero. On too of things he would not take a pill, not in any trick or for any expert with a pill gun and a team of vets, so his treatment was the worst hell I’ve experienced in my life.
      If you have questions, ask here. If something doesn’t sound it seem or act or look right, ask this website. The members on here have experienced it, do it everyday, have seen survivors and suffered losses. This was the best source of information I found. Hang in there. It’s great your baby ate and keep calm (they read our anxiety…sometimes Wilson only ate if we ate)…and best of luck.

  • Sloane, sounds like olive’s cil was diagnosed quickly. Just remember that food handouts are going to hurt her. I used potato as a treat for Ella. When Ella was in remission I had a hard time with my mother-in-law sneaking food to her because she didn’t believe Ella was very sick. This was no help to Ella. Just be clear that olive can only have her special diet. I will never know if my inlaw helped make Ella worse. Good luck to you and olive Anne!

    • Annie's mom

      my husband let Annie get into things when I was away. I left her in her crate but he would let her out and not watch her.
      just a tiny tiny piece of bacon – the fatty part – made Annie so so sick.
      it’s hard not to give treats, especially if you have more than one dog in the house. I bought some of the special diet treats for Annie. they seemed fine as long as she didn’t get too many in one day.
      I liked the Purina HA diet treats best but they were hard to find, had to order them. My vet carried the Hill’s kind.

      • Linda Lewellen

        I am curious because one of my 5 dogs is the ill one and the others now have less access to their usual food and all bones and treats have been removed. It is hard to have control when my dogs also hide bones so if I try to have control a bone can show up when I am out of the house. That means everyone must eat the same treats.

        Soooooo, anyone with a list of chewable treats would be appreciated. In saving Gabe, I am struggling with handling the eating habits, treats and teeth chews for my other dogs.

        Tips welcome. It is exhausting as I love them all and I have no way to explain it to them.

        Linda…not just Gabe’s mom…

        It is a timely and sensitive balancing act.

        • Our vet suggested carrots as treats and all of the dogs love them and they are good for your undiagnosed dogs as well as the sick one…they love the crunch and can have as many as thy want!!!!

          • linda lewellen

            I will try the carrots.. I have tried homemade cooked potato wafers with little success.

            WARNING…… OUR VET SUGGESTED THE NON- EDIBLE NYLABONES. OUR DOGS LOVE THE EDIBLES.

            BOTTOM LINE..BEFORE I EVEN TRIED
            MY MARRIED DAUGHTER’S 6 MONTH OLD 55 POUND PUP HAD TO BE RUSHED TO SURGERY IN NYC FOR SEVERE PROJECTILE VOMITING AND POOPING EVERYWHERE..

            TURNS OUT HE ATE A SOCK AND HALF OF A SO- CALLED INDESTRUCTIBLE NYLABONE. HE IS VERY WELL SUPERVISED AND MAY ALSO NEED INTESTINAL SURGERY FOR INTERNAL DAMAGE NEXT WEEK. THEY HAD TO CUT THE BONE OUT. THIS WAS NOT A CHIP BUT HALF OF A MID- SIZED BONE.

            THEY INTEND TO CALL NYLABONE TO ALERT THEM.

            I will not therefore be using even those nylabones.

            Linda

          • Carol Abbys Mom

            Be careful of carrots as Vitamin A is something the internal med vets have said to steer away from. Interesting that my dog used to like them as treats before this illness got her down and now she almost instinctively won’t eat them even a few pieces cooked with chicken.

          • Lula's Mom

            Our vet told us to try the Royal Canin LF canned food rolled in to little balls and baked in the oven as a treat for Lula. She loved them. We switched her dry and abandoned the canned. As of now we just do not give our dogs of which we have four total any treats anymore.

        • Carol Abbys Mom

          Linda, the vets have all said since diet is really the most important treatment in this disease, steer away from anything other than his prescription food for now, until you know your dog is in remission and then start slowly giving a treat one by one. Never bones and steer clear away from any not manufactures in the US, not just based here, you have probably already become aware of dogs dying due to Chinese standards with their products. Anyway, mine is a treat hound and misses table food treats we used to give but I have to remind myself she’s just doing what she’s always doing and I AM SAVING HER. That’s the goal. And after spending at this point almost 10,000 dollars, I am trying to achieve it.

  • Sloane

    Thank you to Wilson’s mom and Ella’s mom for all the encouragement. 🙂

    Restraining food has not been an issue for us, as my husband is a veterinarian and we have always been really careful about what our dogs get. What is an issue that’s nearly caused me a panic attack over the past week is when me very senior boy meanders away from his bowl, leaving kibble behind, and Olive Anne runs to it before I notice. I’ve caught her twice making her way across the room to where his bowl is. He only leaves behind a kibble or two, so before it never mattered, but now it’s a matter of life and death. Meal times are now highly supervised.

    This diagnosis is a life change for all of us. I’m really appreciative of all the stories I have read here.

  • Sloane
    it is more of a challenge with multiple dogs and cats too. Dogs love catfiod which is not good for them. Ella was an only child but our kids would bring the dogs for bsbysitting. I would keep Ella out of the kitchen when they ate, if the didn’t finish I put it up. For Linda. Elle loved carrots and potato chips for treats. I had time to make chips in oven, no oil used. Slice thin on box grater,put on parchment paper and bake until crisp. Could use a dehydrator too. Be sure to peel the potatoes. I also added baked potato to her food.

  • Sloan

    How is olive Anne? I am sorry that I listed carrots as a treat,my vet said they were good and a number of other VEGGIES.. My vets really had not treated dogs with cil before.

    • Linda Lewellen

      No to the carrots but I just met with a nutritionist for our Gabe. His weight has been steady since his diagnosis about 3 months ago and protein up from a low of 1. However, I have been over feeding him nearly a pound of white fish daily and not a lot else for balanced nutrition.

      I have been cooking the yogurt with the fish which ruins the probiotic value.
      Sweet potato and elbow macaroni and measured potions were recommended.

      I want to stress this was based on Gabe’s current bloodwork, meds,and progress, plus that he has reasonably formed poop and is not vomiting. Please consider that each of your babies conditions is unique and you should proceed with caution and your doctor’s approval…assuming your doctor is knowledgeable.

      No radical changes to your dog’s diet is probably good advice.

      Linda

  • Sloane

    Thank you for checking in with us, Ella’s Mom.

    Olive Anne is stable, but I feel like we’re on the edge of a cliff. She’s eating her Royal Canin LF like a champ. Her bowel movements are still solid, but I have noticed the gurgling in her belly has returned. And, I think I’m beginning to see the beginning of ascites as well, which scares me.

    She is currently on RC LF diet, flagyl, pred, forti flora and vitamin B injections. We will start her on cyclosporin tomorrow. My prayers are that the cyclosporin helps relieve the inflammation and we can back off the prednisone.

    If you weren’t her parents, you wouldn’t know she was sick right now. But I want her “normal” to be a little more stable than this. I’d like to back off from the edge of the cliff just a little more, so we can catch our breath 😉

    Hope Ella’s adjusting to life without carrots 😉 Wish they understood how good our intentions are. Unfortunately, this disease leaves very little room for dietary indiscretions, I think. If Olive gets a treat, it’s a piece or two of her kibble. I’m just too worried to try anything else right now. Once we’ve been stable for a while, I *may* try to introduce potatoes or something that others have found safe. But not until we’re healthy for a while.

    Best wishes to you and yours!

    • Linda Lewellen

      We know how you feel. Sadly, we also have several dogs at my husband’s place of business and on Saturday, even though his business is very rural, someone hit and ran Lucas and severely
      fractured his jaw in multiple places. Lucas is a year old mastador so he is 100 pounds and doing well after 6 hours of surgery. Someone actually hit him on private property.

      I say this because, like you, we have a PLE dog as well we are struggling to keep in remission and just today we asked if we could hope that once weaned from some of the cortisone, we might see more of the Gabe we remember. Now Gabe is healthy on paper but sluggish, lackluster and sleeps most of the time. My husband and I are exhausted making trips to doctors, cooking, shopping and cleaning up a lot of urine. We have to make up a lot of time at our business. We take turns napping. Lymphgestasia is a wicked disease. Reminds me of my dad’s losing battle with Mesothelioma…

      We really do feel fortunate that Gabe is doing well so far and we were able to save our other dog, but it takes its toll emotionally, physically, and absolutely financially. We go no where and our friends joke our Gabe eats better than we do
      :-).

      Animals and people share a special bond.
      Linda

  • Lisa

    My almost 3 year old vizsla, Koa has been diagnosed with Lymphangiectasia and Inflammatory bowel disease in september. We thought he had a bowel obstruction and when they did the surgery he was filled with fluid. He almost didn’t make it, but 2 months later he is doing well, back up to his pre illness weight but his energy level is way down for his breed. He is on 2.5 mg of prednisone every other day and i have been supplementing his science diet with a probiotic and vitamin C in the morning. We have taken him to a few vets in the area and one has suggested vitamin k injections. Has anyone else done that at all? Another vet has suggested trying to wean him off of the steroids, but the other one has suggested increasing the steroids to control any new flair ups with either disease.
    Any suggestions or prior experiences with prednisone and weaning the dog off of it would be great.
    thanks!

    lisa

  • Linda Lewellen

    I am not a vet but at this time our internist told us the plan was to reduce the 5
    M a day pred on our 5 pd dog Gabe by small titration if bloodwork drawn this week came back as good as last time. He is also on Flagyl and moving from weekly to monthly B1
    It sounds like you might be considering many changes at once. My doctors won’t even change a type of food quickly.

    Vitamin k in humans is usually for clotting.

    I owe Gabe’s quick remission to this forum and my vet’s admission that they have only seen 3 dogs with this disease in 20 years and Gabe is #3. Plus they are a fairly large practice. They had the wisdom to refer Gabe to Gulf Coast Veterinary in Houston’s Galleria area where they have 24 specialists.

    Louie’s mom is right.
    Have a support group
    Not all vets understand this
    Diet is critical.
    Do not be hard on yourself…..none of this is your fault. It is costly,timely, and some of our dear ones just will need the mercy of our letting go
    Have a life…remember your other furry ones need you and your families and children. I added that one..
    Love yourself as well. Hang in there. Breath deep. No quick moves. :-).

    Linda

  • Debbie

    UGH!!!! My 4lb yorkie is sooo sick. I thought she had a cold & the vet told me to take her to the ER. That was Oct 22. Vet told me my Venus was is really bad shape. X-rays showed she was so full of fluid that her lungs were separating. She was too sick for a biospy so vet said due to lots of blood work that we were going to proceed to treat for lymphanigiectasia – due to the fact that her protien was so low. She spend numerous days in ICU & got IV meds. We have been battling but last blood test on Wed showed that we lost some ground. She is currently eating Royal Canine DP & getting 1 Hills Hypo bone per day. Now she has just decided she doesn’t want to eat at all. Tried some white fish last night that she ate a bit but then this morning she had diarrhea. She is taking a 1mg asprin daily, .5 metronidazole 2x daily, .8 pred, a diretic. She doesn’t even want to look at me she is so ticked. All she wants to do is hide in the bedroom as she feels like I’m constantly giving her meds or trying to get her to eat or drink. Help!!!

    • Linda Lewellen

      So sorry.

      First question…..

      Our internist said no nsaids at all while on Prednisone so is the aspirin ok?

      Are you confident with your dr. as other drs will consult.

      Lastly, I wanted you to know that when dogs hurt or are depressed they can be moody or cranky also. It is hard to see all of this happening, work so hard, spend so much, only to find your sweet dog hiding from you because you now represent
      bad tasting food or meds or injections.

      I have that with my dog and it is emotionally difficult to find the dog that cuddled with you now sleeping by himself. I share this because I want you to know you are not alone in this. There is obviously no way Gabe knows that what I am doing is trying to save him. He only knows I am the one taking the stray piece of regular dogfood away. I am the food police.

      My other dogs also no longer get treats that Gabe might find.
      I am the grinch. So amidst all of this, there is little left for kisses and any sense of what we are doing for him.

      So, for all the 6 years of unconditional love, I guess it is now our turn. And, unlike our wonderful dogs, we want that love back and it is added sadness to see them ill and also seemingly unloving.

      I don’t want you to feel isolated in this. I often talk and cry alone with Gabe in the LR where he now choses to sleep.
      Maybe he is just in discomfort. Maybe he senses his lack of a normal future.

      Whatever, get the best vet you can and trust in your dog. I know it is both hard and sad.

      Linda

  • Sloane

    Sorry to say Ella passed away after a sudden rupter of her colon. That was in June. She had been in remission for almost 2 yrs.

  • Linda and lula’s mom and wilson

    Thankyou, all our pets have been through so much with this disease. I can only pray that a real cure will be found. My thoughts and prayers are with all of you and your sweet dogs.

  • Jamila

    Hi Everyone,

    I am so glad that I found this website. Everyone’s stories and ideas have been so helpful, so I wanted to share some food ideas in hopes that we can give back a little of what we’ve learned.

    Babette was diagnosed with IBD and lymphangiectasia in September. She was not eating consistently. She’d show interest in food for a day, or even just one meal, and then she wouldn’t want it again. She didn’t want pumpkin, rice, turkey, tilapia, Honest Kitchen or tuna, not to mention any of the foods recommended by the vet. Louie’s Mom and our wonderful vet said the same thing: “If you were feeling that icky, you wouldn’t want to eat either!” It was hard letting her skip meals, and even harder because we didn’t know what she would eat when she was hungry. It was a very scary time.

    What has worked for Babette is a combination of pasta (boiled for about 45 minutes and mashed with a potato masher into virtual paste) and fat free cottage cheese. She eats 3-4 times per day, and gets between 2100 and 3000 calories. Our vet actually liked the addition of the cottage cheese because it is a fat fee protein source from which she is also getting calcium. It is high in sodium, however, so we are very careful to give her only the amounts necessary for her daily protein needs. That said, she loves it, and it makes us feel wonderful to see her eating something with enthusiasm again.

    Since she started this diet, Babette has gained another half pound, and her albumin is up from 1.6 to 1.9. They are small steps, but in the right direction. I hope that this helps anyone who is having difficulty getting their baby to eat!

    • Linda Lewellen

      Thanks for asking. Just got second lab set results.

      Protein still, just over 3 from 1 and other readings at lowest of normal range. Gain of one ounce from 5 pd arena to slighly over.
      Gabe is alert and did not respond to the nutritionist’s diet to include elbow macaroni do we switched to sweet potato and Gabe is scarfing it down with Tilapia, and today Balance IT just arrived.

      It seems I was over feeding him by double so now portions are weighed. His tummy is now less swollen. I was so afraid he would waste away.

      I am told that next week the Prednisone will be slightly reduced. The Flagyl will remain the same, the B12 injections will go monthly.

      Gabe is still lethargic. Pees a LOT and poop is medium. You might not tell but he is not bright-eyed and seems to isolate himself. I have 4 other Yorkies about his age. He is not the same outgoing personality.

      I am thrilled medically and it has been a lot of work. But, I don’t see the sparkling, vivacious, dog wagging vital friend I have come to know and hope that part of Gabe can return even a little because I miss him…

  • Oh. Poor little guy. If diet and meds help him into remission he will start perking up. I used to think Ella was cured when everything was working. Hang in there!

  • Linda Lewellen

    I thought that this actually WAS remission. Maybe I have it confused with stabilization…as no one has explained the difference.
    Indictors are moving into more normal ranges. I know there is no cure but the hope to maintain Gabe in a viable zone.

    My question is who will Gabe be when in that zone….a happy dog or something of an invalid not quite up to the things he enjoyed and looking at me sadly for things I have to monitor for his preservation?..Does he get to enjoy his life or just live it
    Or am I getting too philosophical from my late night chats with him on the couch?
    How can we love our dogs sooooo much.?????????

    Linda

    • Lula's Mom

      When Lula started improving it was a slow climb out of the disease. Along the way her meds had to be adjusted. Everything I read is once they begin to stabilize and go into remission they can have very few if any flare ups. I have maintained Lula’s dietary restrictions and her food. It has been almost two years now and she still has not regained all the muscle she had. She is a dogue de bourdeux they are very muscular dogs. I don’t care about the loss of her muscle just as long as she is stable. I guess all I am saying is take your victories and enjoy them how ever small they may be. It is another step in the direction of recovery. God Bless!

  • Linda

    Lula’s mom is right. Ella was very sick for a month or so. When everything started to click she was her old sweet self. One thing I regret is not taking enough lice on my camera, I lost all my pics that were on my cell ph. Our dogs are people to us…Ella was my best friend, my little shadow. It still hurts. I have many happy, funny memory’s. Relish the time you have!

  • Debbie

    Has anyone tried Probiotics to help? I’m sorried about all this metronidazole that Venus is taking. She is getting .5 twice a day & from what I’m reading thats very hard on her liver. Dr said aspirin needed due to the fact that she got a blood clot while she was in the hospital. Dr said that with the leaky proteins she would be prone to another one and that the aspirin would help keep that at bay. She will pick at the Royal Canine Duck/Potato but is now eating white fish. I tried to put some baked potato in it & she eats around it or smells it & walks away. What else do any of you suggest. I hate seeing her looking so miserable. She used to be such a bundle of energy, now I have to coax her to get out of bed & even sit in the room with everyone 🙁

    • Lula's mom

      I did try probiotics for lula my vet basically said anything
      that can help and not hurt was worth trying. I believe
      You could even try cottage cheese or egg whites. Low fat
      Is the key word. You never know what major combination will work
      To not be discouraged by trial and error. Best of luck and wishes for your
      Pets recovery!

  • Debbie

    Wow! We have had some wonderful news today!!!! Venus’s blood work came back with ALL numbers in the “normal” range! Dr said to back her off of the aspirin (I did express concern about her belly with being on the steroids with that) & take her off of the water reduction meds since her belly sounded/felt good. Staying with the steroids & antibiotics and adding some probiotics. Working with some other flavors of her prescription food. Dr said we can be cautiously optimistic since she is responding to treatment.
    YEAH!!! What a wonderful Christmas Present God has given us!

    • Lula's mom

      So happy for you! That really is a great gift.

    • Louies Mom

      Post like this are what I live for. I am so happy to hear this. You must be over the moon!

      • Mickey's mom

        My papillon recently had a flare up of his lymphangectasia disease. I just put him back on antibiotics. It’s so hard to watch him go from being happy and content to miserable and in pain. Today is day 3 of meds and he seems slightly better…just in time for the holidays – thank god.

        Anyone have any suggestions for little gifts for your pet with lymphangectasia ? He can’t have any treats and I have to be so careful about toys that he could chew pieces off of..

        -tori

        • Linda Lewellen

          Our dog Gabe has always been a heat seeker. Even in summer he loves to lie hear a floor heater.

          We bought a neat item from Cozy Comforts. It is a cushy ele tric pad bed that only heats when and where Gabe lies on it. It only goes to 102 degrees, the temperature considered safe for dogs and the outside is washable. Comes in 3 sizes.

          Linda

          • Louies Mom

            I have one of these pads, and my cat absolutely loves it.

            Louie never had much use for toys, but I think a nylabone (unflavored) or something else like that would be fine for any lymphie dog.

          • Mickeys mom

            Thank you for the suggestions. He used to have a nice nylabone…not sure what he did with it! Ha.

            Hope everyone has a good holiday – watch out for people dropping food if you’re having dinner parties!

  • Jill Jones

    Thanks so much for hosting this wonderful blog and providing much needed information on CIL. My dog passed away two weeks ago from this dreadful disease that was complicated by an auto-immune disease also of the GI tract. I miss her dearly and she was far too young to lose her life to such illnesses. With that said, I relied on this blog time and again as well as my internal medicine veterinarian specialist and am so appreciative of the support. My heart goes out to pet owners who are dealing with this disease. My best to all of you 🙂

    • Linda Lewellen

      My sympathies and also my gladness that you had the time you had.

      Just now I watched my Gabe try to get up on the back of the couch where he always now sleeps or naps. I now sleep here at night at well since he no longer joins us and other 4 Yorkies in bed…
      For the first time he was unable to get up on the back of the sofa by himself.
      It was a sobering moment.
      Then I opened my mail and realized I will be posting a note exactly like yours.

      Be well, have fond memories, and my heart is very much with you…

      May you remember the loving times…

      Linda

      • Lula's Mom

        Linda I am sorry to hear of your sweet Gabe and his difficulty. Lula had the same problem she could not climb the stairs and she did not want to be left downstairs alone so I slept downstairs on the couch for months. All I can say is keep hope. Your doing your best and your sweet furry child knows that.

      • Jill Jones

        Thank you for your kind words, Linda. Best wishes to Gabe. These sweet pups go through so much with this disease. It can be extremely stressful for the animals and as well as their owners. I am thinking of you. Take good care, Jill

    • Lula's Mom

      I am so sorry to hear of your loss. My prayers and thoughts go out to you during this difficult time. God Bless.

    • Louies Mom

      I am so sorry for the loss of your dog. My most sincere condolences.

  • Sloane

    Jill, my deepest condolences to you. It’s an awful time of year to lose someone you love; but, I suppose, there’s never a right time for it.

    Linda, my heart aches for you as you watch your valiant little Gabe struggle to regain the health he has lost.

    All of these beloved dogs and their people are certainly in my prayers this Christmas and holiday season.

    • Linda Lewellen

      Wishing all of you a happy holiday season. I know that for many of us 2014 may bring some sad losses and decisions.

      I want to say that not every dog has the good fortune to be part of a family as loving and sensitive as the people it has been my blessing to meet on this forum. No matter the lifespan, each of these wonderful members of your families has
      come into a home filled with love.
      You are a special group it is my pleasure to know even if it had to be under such circumstances. I wish you and yours love and most of all strength for the coming
      year.

      Linda

  • Sally's Momma

    As I read about the struggles and losses, it brings tears to my eyes… it was this time last year that my Sally’s symptoms started and her Christmas Eve supper consisted of rice and pumpkin, as I thought she simply had an upset belly… it’s been 10 months since I had to say goodbye to her and when I read of other “Mommas” watching their furry children decline in health, my heart aches for all of you…. You’re ALL in my prayers and I truly hope your “furries” respond to the treatments/diets… please remember, however, that it’s ok to say “goodbye”… to free a sick loved one from their suffering… when their quality of life is non existent, as hard as it may be for you, don’t lose focus… sometimes the best decisions are the hardest to make… I never thought I could say “goodbye” to my best friend… but when I look back at pictures, she was so thin… she had no life, no sparkle left in her eyes… she was falling…. I know I did the right thing… It’s awful, but know that every penny you’ve spent, every tear you’ve shed, every minute at the vet, celebrating every ounce gained or every firm “poop” ;)…. you’re not alone… Big hugs to all of you xo

  • Hammer's Dad

    My 7 yr old weimaraner was recently diagnosed with CIL. After eating a large portion of a leather couch, they had to do a gastronomy to remove the material. The Vet said that he noticed abnormalities in the small intestine, so he did a biopsy. He also said that Hammer’s protein levels were a bit low. Here is my issue:
    He said that he has diagnosed this several times, yet he has only been practicing for a few years. It’s been so long, that I can’t remember the last time Hammer had diarrhea, or vomited. He has not shown any symptoms. No fluid in the abdomen, nothing! Yet, the vet has not been the least bit positive about the situation. I know the situation isn’t ideal, but it’s almost like he is trying to sell me on the worst case senario. With no symptoms, he wants to start pumping him full of steroids and a bunch of other meds. He says that Hammer has between 6 months and 2 years to live. Does anyone have any insight to offer? Also, i see some references of specialty hospitals and places that are experienced in treating CIL. Can anyone suggest a place for me to take Hammer for a second opinion?

    • Sally's Momma

      Hi Hammer’s Dad…
      I’d definitely get a second opinion… if Hammer isn’t experiencing any symptoms and is healthy, other than the biopsy result, I wouldn’t pump him full of drugs that can be so hard on his system…. Definitely get another opinion…. Research internal medicine vet specialists in your area for sure… Good luck and keep us posted!

  • Jill Jones

    I was referred with my dog to an internal medicine veterinary specialist. The general vets told me that they could not successfully treat the lymphangiectasia. I have had several vets, general and specialty, tell me that this disease is extremely rare. What was interesting is that the internal medicine vet told me that my dog would live a normal life expectancy as long as the disease was controlled (very low-fat diet). She lived one year into the diagnosis with lymphangiectasia and then developed another disease also impacting the GI system. That disease was not there when her original diagnosis was made via bloodwork and gastroendoscopy. With all of this said, I have read over and over that the typical lifespan once diagnosed is between months to two years. I wish you and your beloved pet all the best. I will be thinking of you and all the other owners and dogs that visit this site for insight and help. Take good care.

  • Cheryl Cene

    My dog Abby was diagnosed in the fall with lymphangiectasia. She is doing so much better right now, gained weight back and playing with her toys again. Her stools are solid now. She was on a lot of meds. She now takes Atopica once a day and 5mg steroid every other day. Also B12 shot every 2 weeks. She eats LF Royal Canin. We mix the canned with some dry. But what I wanted to tell everyone looking for a treat for your dog. We stuff a Kong with the LF canned food and freeze it. I have 2 that I freeze for her. We give her one every evening around 7:00. She lets me know it’s time. She loves them and it keeps her busy for about 40 minutes. My best to everyone in the new year. It’s a tough disease and has not been easy on the pocket book. She is the best dog and loved so much.

  • Erin

    Rocky our 5 yr old boxer was doing very well until now! He is only on the turkey and potatoe diet and cyclosporine now. Last night he vomited twice so I did not feed him this am as he has procreatitis too…didn’t want to upset stomach more. Last month his pancreatic levels/enzymes were good…..came on so sudden! Pray for Rocky that this is just a short set back….he was doing so good! Not a good way to sart the new yr!

  • […] which I believe has helped her a lot. Here's a link to a site all about canine lymphangiectasia. Canine Intestinal Lymphangiectasia 101 Louie the Love Muffin I'm praying for your baby to respond to treatment and lose her tummy! __________________ Custom […]

  • When I initially commented I clicked the “Notify me when new comments are added” checkbox and now each time a comment is added
    I get four emails with the same comment. Is there any way you can remove me from that service?
    Many thanks!

  • Samson's Mom

    I cannot tell you all how wonderful it was to find this site. My schnauzer mix was diagnosed with CIL a few weeks ago after over 8 months of tests and sickness. He’s on Royal Canin LF dry and canned and I put the potato flakes in it, as well, after reading up on this site. It’s only been about two weeks since he’s been solely on this diet. I’m having a hard time being patient, as I hate seeing him so down. His appetite is great, but he’s lost several pounds over the last couple months. He’s very lethargic and just not himself. He’s on prednisone, pepcid, furosemide, and metronidazole. His protein went up 1 point in one week, which was a positive sign. His stomach is constantly making noises and he doesn’t like to lay down. I’m hoping to see improvement soon. I’m hoping it’s not too late for him to heal since he was sick for so long without being diagnosed. I want to thank you all for giving me hope and so much helpful information. Please keep him in your prayers.

    • Lula's mom

      Hang in there. Prayers for your furry loved one too! This
      site is a great find. I wish you good luck!

      Lula’s mom

      • Hi.

        Yes. This site is a blessing. My 7 year old Yorkie got this 8 months ago. I thought by now he would be emaciated.

        We are using Gulf Coast Veterinary Hospital in Houston.

        Current diet is tilapila, sw potato, 1/4 teaspoon Balace IT nutritional supplement and 1/4 tspb canola oil .

        He was 5 lbs. Now 6 lbs. Is on daily flagyl and prednisone. Was weekly B12. Now monthly with all meds being tapered down.
        Protein, etc. up to 3 from 1. Lowered pred. Plus ever other day. He looks good. More energy. Better coat. Good appetite.

        Gabe has a wonder disposition and with limits is doing well. Some rear leg atrophy so he get turbogesic 2x a day.

        Cooking for him seems to make a great difference.

        Good luck.

        Linda

  • Dagmar's Mom & Dad

    We are happy to say that Dagmar has been doing amazingly well the past month or so. After being diagnosed in Dec. 2013 with CIL with IBD . She had been bloating up and was losing muscle mass when our vet sent us to MIchigan State Vet Hospital. She had an endoscopy that confirmed the diagnosis. Standard treatment…Prednisone, metrodiazinal, famotidine and aspirin. Diet change too. We finally settled on fish and sweet potato. She eats Purina HA kibble(soy based) , Wellness Ocean Whitefish and sweet potato kibble and we supplement her kibble with poached Mahu Mahi and steamed sweet potatoes. The Mahi Mahi is a very low fat fish and the sweet potatoes work good as pill pocket. She gets 80% kibble to 20% fish and potato. Sometime we use just a white potato for variety but Dagmar really likes the sweet potato. We have gotten her medication down to 1/4 of a prednisone every day. The metrodiazinal was only for the first 4 weeks after diagnosis and the aspirin we don’t give anymore because her proteins are back up to normal. The aspirin was prescribed originally to avoid blood clots that can occur when certain proteins are very low.
    The famotidine(Pepcid AC) was prescribed to help with her sensitive stomach which she doesn’t have anymore so we only give that very once in a while. Dagmar never really had loose stools but she did have some vomiting spells during those early months when we were trying different foods. Dagmar is acting more like her old self now that the prednisone is lower. Not soooo hyper active or bark bark bark. Still working with her on some bad habits she picked up due to the prednisone.( wanting to eat all day long) . We are down to feeding her only 4 meals a day with a little kibble as a snack. Her skin and fur have recovered although her dark silver Yorkie hair has grown back very silver. I hope our news is encouraging to all you who have sick dogs. I think the key is very low fat protein source but the trick is to find one that your dog likes . Good luck to you all.

  • Abbys mom

    Do you mean his albumin went from .3 to 1.0?

  • I have been reading many posts trying to learn as much as I can about this horrible disease. Every story is so different. For hours I read, cry, gain a little hope, and the cry again. My best wishes to all of the wonderful caring parents here and their precious little ones. My little 5 lb yorkie Nubbins has been diagnosed with protein losing entropy after cbc was done in response to lost weight, diarrhea, and pot bellied appearance. Her album level was down to 1.7. First vet told us to put her down there was nothing we could do, except maybe rush her to cornell. Did some reading and refused to except that, pushed for some care plan. Started her on flagyl, probiotics, and super low fat. She responded well but still picky eating and weak. Went to second vet for another opinion. He was also less than hopeful, but gave her depo shot, lasix shot followed by pills, continued probiotic and flagyl. She began to improve in appetite, energy we were amazed. At 2 weeks she was down again lethargic, bloated with fluid, etc. Vet gave a.other depo she pivked back up, this time we started her on the RC G/I low fat dry, it was amazing she was eating it great, no fluid in belly,gained few ounces, following husband around house everywhere as usual. I swear you could see her smiling. Two weeks after 2 nd depo inj the vet put her on 1.25 mg of pred every other day. This dose seemed so low to me. She is not redponding to it and vomitted after I gave it to her. She also had diarrhea for first time in weeks. Started giving 2.5 mg pepcid ac prior to pred seems to have helped, she still won’t eat. Have an appointment with internal med specialist thursday but I feel I will end up taking her to Er if she decliness before then (we have made er trips in middle night 2x this past month. Hoping to talk to specialist about budesonide, current vet said it was people meds and he would not prescribe it, he also says diet is not really that important which leads me to doubt his information. Any similar cases, experience, advice would be appreciated.

    • Linda Lewellen

      I don’t know where you live but you might try a referral by phone to one of the hospitals others have mentioned. I use Dr. Davenport at Houston’s Gulf Coast Veterinary
      Hospital. My Gabe is on Tilapia, sw potato, powdered vitamins, canola oil, B12 shots, Flagyl, prednisone, an since it is almost a year, some turbogesic for pain.

      Do not put your dog down due to vet ignorance. Gabe has gone from 1. Protein to 3.

      We have no fantasy that he is not dying. His muscles are atrophy ing in his rear legs after 9 months. But, he other looks good and
      seems to have a reasonable quality of life.
      Btw, we have 6 Yorkies and he enjoys his family. When it is his time, we will let him go with dignity. But, right now he comes running for his food!

      Keep strong. Let him set his own pace. Contact me if you need to. I have accepted that I am doing a lot of extra extra work and that it is what it is one day at a time.

      Linda

      • We live in Rochester Ny the appointment we have Thursday is with the areas only internal medicine specialist. She still will not eat, nothing today. Talked with main vet about her vomitting and not eating, but did not get any answers. He said he was put out that we made specialist appointment without contacting him. We made apointment over weekend the specialist vet is open 24 hours. We called today to tell vet about specialist appt. Shouldn’t he want to work with an expert? He says they will poke and prod demand expensive tests and probably make her worse. So confused and stressed we are planning on heading to Er vet to see about something for nausea/appetite. Feel like main vet is mad at us, told us to ask expert about adjusting dose of pred. Feel like maybe my vet had problems or something with the specialist vet group or something. Now on top of everything I have to find another vet. I just don’t think a vet should take wanting an expert opinion personally. And even if a little “put out” sorta surprised he said something instead of being more professional. Thanks for any help or suggestions, just want to do all we can, we were so close just days ago, can’t give up on her.

        • Louie's mom

          Sounds like you need a new vet. No vet should make you feel bad about wanting another opinion. His job is to do everything possible and support everything possible to make sure your pet gets the best care available. You might ask the internal medicine specialist to refer you to a new primary vet while you are there.

    • Jill J.

      Christina – Going to the internal medicine specialist is the very best action you can take. My Norwich Terrier Honey’s albumin was at 1.5 by the time we were referred to internal medicine and she had to have a blood transfusion…2 units of canine blood. It helped tremendously and she was able to keep going for almost one more year (with lots of veterinary support) before completely falling apart at which time I had no choice but to put her down. Trust me when I say that the year between diagnosis and the end of her life were very stressful for not only my sweet dog but also for me as the primary caregiver. By the time it was all over, I was exhausted and emotionally drained. It is so difficult to go through a chronic illness like this one. Devastating for all. Six months later it still brings a tear to my eye. Thanks for the support of this site, I recently brought home a new little girl and am enjoying her tremendously. She is young, healthy and vibrant. Thankfully, there is life after lymphangiectasia! My dear little Honey will always hold an extra special place in my heart. Best wishes to you and your special little one.

      • Thank you for your post so sorry for your lose. I an sure Honey knew what a great mom she had. I totally agree about being drained by this. Feel like I am her hospice nurse (which is something I am too familiar with. In past few years I lost father to rare disease similar to Parkinson’s, he was in home hospice immobile from neck down. I was secondary care giver to his wife. He passed xmas morning few days before 55th b-day. Then the following year my mom had stroke and I was her main care giver while she slowly wasted away for year and half. I have spent more time watching those I love waste away then anyone should. Ironically the week after Nubbins started getting sick I was suppose to start treatment for anxiety/ depression. Unfortunately that will have to wait, I won’t leave her alone. Only time I go out is if husband is hesr in case she needs us. The worse part of it is we have spent over 1000 so far, and are tight for money. I have not worked in over a year due to my depression. My 28 year old little brother died suddenly last May. After so much lose just stopped going out, wanted to be alone or just with my dogs. Now I have to watch my little girl waste away. If she has a good day I cherish it, when it’s a bad day I can’t breath. Constantly cooking, researching, logging behavior, etc trying to give her every chance. My husband says my depression has been better since this, think I switch to hyper-care mode. Feel like it is my fault we do not have more money to get her all she could possibly need. Ended up with huge hospital bills insurance wouldn’t cover, so credit horrible now. Looking into selling some art prints I have to help with care cost. My wonderful husband and my furry children are all the family I have left. It breaks my heart to think I may not be able to do something she would benefit from because of money. How much were IV treatments? The worst thing is everything was finally going great and then we went to pred and problems again. She did eat a little buffalo tenderloin steak last night and little no fat cottage cheese. She has not had any belly swelling, diarrhea or anything. Trying to get her to eat, but only low low fat. Even though the vet said food was not that important I have seen what happens when she has even little too much fat. Been giving 2.5 mg pepcid ac hour prior to pred and seems to help has not thrown up pills past 24 hrs. Praying that right dose of steroid will bring us back to the level she was st last week.Lots of love and praise in the mean time. She was having pee accidents so we put thin tarp under blanket on “her” king size bed that she so graciously shares with my husband and her two Maltese brothers. Now even more then ever Nubbins does no wrong, just a sweet and precious little angel. Thanks for the encouragement, enjoy your new little baby.

        • Linda Barnett

          What a wonderful loving person you are. How lucky that all of these people and fur babies have had and have you in their lives. I am so sorry to read your post and I just have a deep feeling that you can come through all of this. Please keep your head up. Oji’s mom

    • Sally's Momma

      Christina,

      My thoughts and prayers are with you and Nubbins… it’s a horrible disease and a horrible road… after two months of meds, diets, supplements, vitamin B shots… consults with Internal Med Specialists, I my baby Sally (black Lab mix) had no quality of life left and I decided it was time to kiss my best friend good bye. She was only 7.5 years old… Don’t leave any rock unturned, but don’t keep your baby alive for YOU…. it’s the hardest decision you’ll ever have to make and I pray you find a treatment that works…. just remember to keep Nubbins quality of life #1…
      Big hugs,
      Karen

  • Sorry so long winded, but forgot few important things. Nubbins is approximately 11 years old she was a puppy mill mother we got through a yorkie rescue 4 years ago and yhey said she was 7. She is the sweetest little girl ever took over a year for her to come around and trust us. The rescue said she was a special case and would need lots of patience due to the abuse and horrific conditions she had spent so long in. She was down to 4.12 lbs 4 weeks ago and last visit before problems started again she was just under 5 lbs with no fluid. We did not do biopsy and won’t due to age low album and she was responding great, totally stable, best she has looked in months, you would never have guessed she was sick. Is this regression because the new steroids (pills 1.25 mg every other day) is not at high enough dose or not same as depo?

  • Just an update, our perfect little girl is now at rest. My husband and I are devastated. We had her four years and forty would not have been enough. She came back to us for a week or so and then stopped responding to amything. IN FOURTEEN YEARS I have never seen my husband so upset, she was his little girl. They always turned heads when out together, she was so tiny and he is covered with tattoos (he is a tattoo artist). When he got home from work she would throw herself at him and rub her body on him. When we rescued her she was so scared she would flop over and cover her face. She learned what love felt like and added so much joy to our lives. There is something so rewarding watching a rescue trust and love after years of abuse making greedy jerk puppymill breeders rich. Good luck to sll please consider rescue or Reputable breeder, No Mills, Backyard breeders,or pet store dog (which all help keep the abuse going) Yorkies are like chips, you can’t have just one, please consider rescue it saves a life and enriches yours more than you could ever imagine. RIP our little angel one day we will be together again.

  • Sally's Momma

    Oh Christina, I just read your latest post! 🙁 I’m soooo sorry, but find peace in knowing you did everything you could to save her! I know you’re heartbroken right now…. it’s a horrible feeling of emptiness… but you gave her the BEST life possible and she knew it xo

    Karen

  • Deuce's Mama

    I am still waiting on endoscopy/colonoscopy, biopsies and other test results for my 9 year old Brussels Griffon, Deuce. However, the internal medicine specialist saw signs of Lymphangiectasia in the colonoscopy. We don’t know if it’s the primary cause of low albumin and globulin yet. He has not shown signs of being sick, other than a bout of bloody diarrhea two months ago that was gone in a week with antibiotics and the Royal Canin low fat canned food. Late last week, he was having soft stools again and I was wondering if he was getting another stomach issue. Monday this week, as I was leaving for work at 4:30 a.m. and telling my husband good bye, Deuce had a seizure? We weren’t sure what it was, but he couldn’t stand up. We rushed him to Emergency Vet and they looked him over, said it was a pinched nerve and were going to give us a muscle relaxer and pain pill and send us home after x-rays. The episode had passed, he was walking and standing with no issue. However, they wanted to re-run a blood test as it had an abnormal result. His albumin was 1.5. They told us to follow up with our regular vet, which I did the same morning. They did more x-rays and blood work, gave us the Royal Canin low fat food again and referred us back to where we started that morning – the emergency vet also has specialists. They kept him for a day and night and ran the tests and she said the ultrasound showed small fluid filled cysts inside his colon as well as abnormal sludge in his gall bladder. She said he would probably need his gall bladder out even if it was Lymphangiectasia. One option she gave me was surgical biopsies and removal of gall bladder, but warned of the risks with all the bacteria in stomach and that dogs with Lymphangiectasia have a harder time healing. We won’t subject Deuce to chemo or radiation even if it was discovered he had cancer, so we opted for the endoscopy/colonoscopy, hoping it would give us a diagnosis. We will deal with gall bladder later if necessary. I just wanted to hear it was something we could treat. His appetite has always been good and he gobbles up the Royal Canin like it’s filet mignon. Right now he is on Prednisone, Clavamox (antibiotic for colon), Metronidazole and Pepcid. I’m hoping the pinched nerve or whatever it was with his back Monday morning was just God telling me something else was wrong and get him to the vet. I’m hoping we’ve caught it early and can begin making changes before he exhibits other signs that I have read about. I have baked some of the Royal Canin in small pieces to give him as treats and will be strict about him only having the Royal Canin until his follow up ultrasound and blood work in two weeks. Though I have ordered some things on the internet I have read about, like digestive enzymes, but am going to wait for results before introducing anything new. I have only started my research and still have a lot to read, but am so thankful for this site and to know there are others who have gone through this that understand and will be a source of knowledge as we figure out what will work best for our son Deuce.

    • Bailey's Mom

      Bailey also had a “seizure” (couldn’t move his limbs, extremely stiff, lasting about 30 seconds to a minute) about a month before his belly started bloating. Once he was diagnosed, the specialist was surprised that his bloat would come and go on it’s own. He was officially diagnosed 5 months after his “seizure” episode (that was 4 months of being told it was just belly bloat and not thinking to do an ultrasound). They didn’t believe his was a seizure either. He’s had two more episodes since diagnosis, but he does not lose consciousness, which is why they are thinking it’s a panic attack (he only get’s them when he’s in a stressful situation like the groomer, while vomiting, or if there is a visitor he get a weird vibe from).
      Having said all that….I do believe the “seizure” activity was your early sign to take it seriously and I’m glad they are already running all these test for you. I only wish they were this proactive with Bailey in the beginning. He would’ve been treated well before his ascites got to the point it got.

      I think you’re on the right track with food and medication. The metronidazole typically works pretty quick with the bloody stool and firming it. I was just talking with another Dog Mom (Donovan’s Mom) and it was suggested to add fiber to help firm up the stool (the food is low in fiber). After talking to the vet she agreed and gave her recommendations for Bailey. All these suggestions from everyone on here are great! Just remember to always check with your vet before trying anything new. Everyone of our dog’s seem to behave differently.

    • Bailey's Mom

      Oh and best of luck! I hope at your follow-up Deuce starts to show signs of getting better! Keep us posted. <3

  • Emma's Mom

    Our Emma was diagnosed two years ago and has been doing well for the past year – she has been taking atopica and tylan powder daily along with prozac as she has extreme anxiety. I make her food (ground turkey and white potatoes) – 3 cups each a day 6 cups of food in total – despite her ravenous appetite, weight gain/loss is always an issue. Last summer she was at an all time low of 25#, she was at 37# at the start of this month and last week weighed in at 33# – She lost a lot of fur last summer (not shedding, clumping and extreme) and the same is happening again now – she also has large red rash on her belly -taking her to vet on Monday and wondering if anyone here has experienced extreme fur loss and rashes in their dogs as a symptom of the disease – I know this sounds like an alergy, and the atopica that she is taking should be helping with those symptoms – especially fur loss – She is a happy girl and a true fighter – never complains and breaks our hearts to see her this way again – appreciate input – Thanks

  • What’s up everyone, it’s my first pay a visit at this site, and post
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  • Sue

    Hi All,

    I’m in Australia and my beautiful 8&1/2 year old Golden Retriever (Beau) has been diagnosed with this. 6 weeks ago we noticed that his eyes were a bit droopy (no other signs of anything) so we took him for blood tests, found that the protein was less than 1/3 of what it should be. 3 days later the Vet noticed that he had a lot of fluid build up and we had an Ultrasound, the vet put him on cortisone & anti-inflammatories, the fluid and his whole body wasted away within 3 days. He got us onto a high protein diet (cooked chicken, 3 eggs a day, ricotta & mince). 1 week later his protein level was only up marginally (my vet at this stage diagnosed this disease) but my husband wanted a second opinion so we did the endoscope. We’ve been told to use either chemo (but we have another dog so we felt that it was too risky), or the Cyclosporin which I think has even more issues. We are just living each day until he lets us know it’s too much.

    • Sally's Momma

      Hi Sue,
      Sending BIG hugs and prayers…. I lost my Sally to this horrible disease a year and a 1/2 ago… We tried everything- diets, supplements, meds, vitamin B shots… she just didn’t respond to treatment. She was 7.5 years old, a black lab mix and loved life… when she was too weak to go for walks, didn’t get up to greet me, I knew it was time… she was falling due to loss of muscle… it happened over 2 months… I pray Beau responds to treatment, it’s so hard to lose your best friend. Some keep their “babies” alive when they have no quality of life left… it’s a terrible decision to make… However, if it’s his time to go, know you’ve done everything you could to help him…. he knows how much you love him 🙂 xo

      Karen

    • Liz

      Hi Sue,

      I have a Bernese Mountain Dog with this disease. He was one when diagnosed. I have sooo much advice to give you and would be happy to be your email pal- feel free to email me edempsey12@hotmail.com
      I am a nurse and I have as much research on this disease as possible. This web site was my best resource.
      Since your dog is older it probably means he has this disease secondary to an inflammatory process such as inflammatory bowel disease rather than primary. An example of primary would be if his lymphatic system was anatomical narrow.

      1. The first thing I reccommen is you get your dog of chicken immediately, as he could have developed an allergy to chicken. This is very common. Put your dog on Royal Cannon -LOW FAT ID. Your vet can order it. The main protein in this food is pork. Even though it is not nutritional that sound (some fillers like corn). It hopefully will help and it is very low fat and easy to digest.
      2. If he starts to do well on this you can add cooked egg white for a high protein/low fat. Also my Dog eats a lot of skinless flounder and cod fish. I give it too him frozen. If the fish is frozen for over 2 weeks under 0 degrees Farenheit it will kill any harmful organism prior to cooking. Most frozen fish is flash frozen and has been frozen for some time prior to get to the food store. Or you can just steam it. My dog loves it- I call them “fishicles”. Great low fat high protein food. I only give wild caught ocean fish whitefish. (Never ever give raw salmon to a dog- there is a organism that can kill them).
      3. To coincide with the fish- I mix up a dehydrated all fruit and veggie food made by Honest Kitchen “base mix”- you are supposed to add meat to these foods for them to be balance. This allows me to add the lean fish so I can keep the overall fat really low. And since I am convinced my dog has a chicken allegy.
      4. Feed your dog smaller meals-3 to 4 times a day. This way the fat the dog consumes will be spread out and not received in a large bolus- for example 2 meals a day.
      5. Use supplements to reduce inflammation (either in his bowel or lymphatic system). I have been able to lower my dogs prednisone amount significantly by using the following supplements: ]
      Curamin (brand name)- this is made from the active ingredient in Tumeric. This one is pricey- but it is worth it until you get him under control. Once my dog improved I switched him to just plain Tumeric which I get at Costco.
      Only Natural Pet-GI support-This has slippery elm that really helps calm the bowel- and L-Glutamine which is very helpful with bowel issues- both this supplements are used by people for colitis. It also contains Quercetin, bromelain, which help with Gi inflammation.
      Milk thistle: This is to help the liver as the prednisone will surely send up your dogs liver enzymes levels. I have yet to find an article of why milk thistle works but I does! Trust me- my vet prescribed it. The recommended dosage for dogs is 2 mg of milk thistle for each lb of dog weight. So a 50 lb dog should be given 1 capsule per day. A 25 lb dog should be given 1/2 capsule per day. Go very slow with this-as this sometimes can cause diarrhea.

      If you need help understanding the disease- feel free to email- happy to help. Incidently my Dog is 5 now- gained 30 lbs and is happy and healthy. My vet can’t get over it! He is down to only 5 mg a day of prednisone and I think I may be able to wean him off for good. Good luck!

      Liz

  • Liz

    Also Sue your main goal for his diet should be high protein and very very low fat- not sure He got us onto a high protein diet (cooked chicken, 3 eggs a day, ricotta & mince is the way to go.

    Unless you are using egg whites only, non-fat ricotta (try yogurt and Kefir too) and the mince is very low fat. I would still stay away from chicken. Lean cuts from Kangaroo and bison (not ground!) are low in fat- cook yourself. Good luck.

    Liz

    • Linda_harris@att.net

      My dog Gabe was diagnosed last Oct. Protein 1. Now 3. Write if you have a question. So far he is doing well I have no illusions he is cured but he is alive and doing better than I ever hoped. Some atrophy of rt rear
      Knee. On tramadol, happy, playful sweet Gabe. ..

      Tilapia only. Balance IT, OIL. Fortiflora
      Sw pot
      PRED., NOW reduced
      B12 from weekly shots now monthly

  • Linda

    Please write me.
    SiMilan story with Yorkie. Tilapis, sw pot, Canola oil, B12. Pred.

    Balance IT, Fortiflora
    Blood work protein from 1 to 3
    5 pounds to 6 back to 5 when Pred reduced. Also on flagyl.
    281 4928882 Tx Gabe is 8. Been I’ll one full year now. Sweetest and wonderful patient. Sooo loving.

  • Sue

    Hi All,

    I have to say that it’s wonderful to hear from all of you.

    Thank you for all of your advise, it’s funny isn’t it we just do what the Vet tells us. We have been on the Royal Canin Gastro Intestinal Low, but with all of the extra things that the Vet told us to do. So we will stop the chicken, my beef mince is just rump and I can’t see any fat in it and I’ll change to low fat yoghurt. He is still smiling and (after he gets up) goes for a short walk in the morning.

    Again thank you for all of these postings.

  • Bene

    Our Portuguese water dog Tucker(Almost 3 years old) was diagnose(scope) with this when he was 1 year old ….after a few months of trial and much error we now feed him a mixture of 1.5 lbs Talapia, 1.5 cups organic baby oatmeal, BalanceIt powder(Vit) a day ….we divide it into three meals a day to prevent it from all coming back up(He has little spitups on occasion)…he devours his food and is a happy health 50 lbs.You really have to keep an eye on him when food is around because he is constantly after what we eat…tuff love for sure. I also feed him Purebites fish treats(Amazon.com) 100% pure fish ..very smelly but he loves them and we love him. We purchase 40 lbs of talapia at a time and parboil it and freeze it in plastic containers which last about 18 days. This is much work(expensive too) but he is worth it.Good luck to all and follow your instinct because most(All) vets really have no clue re this condition.

  • Jazmine J.

    Were having problems with our 8 year old rottie/black lab mix Kei. We noticed he wasn’t eating as usual so we would “bribe’ him to eat by adding things to his food. That was a terrible idea, now he wouldn’t eat unless we added a little something extra. About 3 weeks ago we noticed almost overnight his stomach becoming very swollen and he was very lethargic. We waited a few days and when we noticed he wasn’t getting any better we decided to take him to the vet. They drew blood and also took a sonogram of his abdomen, we waited anxiously until the next day to hear the results. When we finally received a phone call from the vet, she informed us that his protein levels were very low and his abdomen and chest were full of fluid. My husband brought him back to the vet and they drained his belly with 4 catheters and gave us 20mg Prednisone to give him every 12 hours and told us to give him high protein foods like cottage cheese and eggs that are easier to digest. $700 dollars later we opted to try the steroids and the diet that gave us in hopes that it will work and we will avoid the $1000 (lower end). The first night after his belly was drained we felt like we were on the right track, he looked a normal size again (a little more extra skin) and the Prednisone had him on his feet, wanting to eat and even playing with my brothers dog! We were so happy i would give him an extra treat (milkbones large) But after a few days he started to fill back up again with liquid, becoming even more lethargic then the first time around, more liquid stool and just all around not himself. Today is the 3rd day that he has been swollen, we are going to call the vet Sunday and most likely they will want him to come in and do a biopsy to find out on a cellular level whats going on, and i really think i’m going to hear some bad news….I have been doing my own research and i stumbled upon this site and i just started following on FB with everything i’m reading as far as symptoms etc. i truly believe this is what my boy is struggling with. I’m leaving a comment in hopes that you read it and hopefully will be able to tell me if you think maybe my baby is dealing CIL, i’m so torn between going with whatever my vet says or to try and deal with this before we dive into debt just to see our baby deteriorate. Euth is not an option for us, he was just perfect 2 months ago and i know and have faith that he will be okay again.

    • Linda

      This is the absolute right place. Read the posts. I am down here as Lewellen or Harris with Gabe. He is now at 1 year,stable, normal weight, cheerful, Proteins from 1 now 3. Meds reduced.

      The had been a wonderful dog willing to do what it takes, and a lot of work. No shortcuts. I cook tilapia, swpotato. I give up other things. I have 5 other healthy Yorkies as well all pets. Whatever little things he has fun at we do. He is bright and cheery, tho on meds for a limp. He is happy and cuddly, full coat. We are watchful and not pre tending it has gone away, but we feel reading this site and having great vets is the reason. We are all partners in his loving care, including the great guy our vets call the amazing Gabe.

  • Annie

    Hello everyone-

    Our CIL journey began in April of 2012 when through an US and biopsy, our little Peach was diagnosed. It was a battle to get her back to healthy but we finally did. She’s had minor ups and downs along the way but usually with a little course of flagyl or a bump in pred she was usually back to normal. This time around things aren’t looking as good. In the past 6 months her albumin has been on a steady decline and since Thanksgiving it has nose dived to 1.5 (her all time low was 1.1). Her pred has been bumped up to 7.5mg (she’s about 24 lbs) and a course of flagyl did nothing to help. Our vet wants to try switching to budoneside (entcort) but our old vet specialist seems to think it won’t help. Has anyone experienced a switch to budoneside after such a long stretch on pred?

    • Annie

      Sorry I mean budesonide… all the med names are killing me. Azathioprine was another one mentioned but being pregnant, I can’t handle the meds and my husband travels all the time so I’m not sure who could give her the medicine when he is out of town. And my OB is like not on board with me even having that med in the house bc I’m high risk. I feel so guilty that I’m pregnant or else we could try that damn drug.

  • Sue

    Hi All,

    I’ve got a feeling that my boy didn’t have this because he died within 5 weeks on even finding that he had an issue, he was a golden retriever and his head went from a foot wide to an inch wide in days. I’m still trying to cope. We have a new puppy because we have a 3 year old dog that was extremely attached to him.

  • Rachel

    Hi Everyone,

    My fourteen year old bischon-poo was diagnosed with this disease after blood work, ultrasound and scope. I am very fortunate that I live in city neighbouring Guelph, home to the leading Veterinary School in Canada, OVC at Guelph University. Lambchops was prescribed metrinitazole (anti-diahhrea), predisone (steriod), pepsid (anti-nausea), and chlorambucil. The chlorambucil really made the difference with this combination of medication. He went from refusing food, lots of diahrea, and some vomiting, and substantial weight loss to being healthy and happy. At one point, the metrinitazole stopped working and we switched to tyleson (another anti-diahrea). Lambchops was quite happy taking all his pills every evening on a small piece of bread with peanut butter. He was in remission for ten wonderful months, with monthly checkups to the vet indicating his protein levels were back to normal. Early December he started to lose his appetite and become lethargic. I took him back to Guelph and they told me he was out of remission and they prescribed doubling the dose of predisone, continuing with the pepsid and tyleson and changed his medication from the chlorambucil to cyclosporine. They also prescribed cerenia for the first four days as this is an anti-nausea. Clyclosporine is a very heavy drug which creates nausea so the cerenia was needed to combate the nausea. However, cerenia can only be given for four to five days at a time as anything more than that will actual cause damage to various metabolic levels. The remission rate of clyclosporine in dogs with this disease is 25%. When his medications were switched, Lambie had pure water mixed with blood diahrea. There was nothing else, as he had ate nothing. I was very alarmed thinking can these pills even combate this and called OVC where the vet assured me that this was the disease and to give the pills a chance as results would take a couple of days at least. I slept beside Lambie in the living room and let him out when needed. He still would not eat and was no longer wanting to drink water. I syringed some water and prayed a lot for his health. I then found a natorpathic vet and she recommended giving him a water shot saying that if he’s not hydrated he won’t want to eat. Though he didn’t like it, I also started syringe feeding him small amounts of food, as he dropped to 10lbs in a week from his normal 12-13lbs. I was so conflicted, I didn’t want Lambie to suffer but he was a fighter and came back the first time due to God’s grace and wanted to give him a chance. He was making improvements and even the local vet was amazed when after refusing (healthy) treats the last two visits, he actually was looking for them and ate them. However, Lambie didn’t pull through this last time. I slept by him, monitored him, and took time off work to be with him, but I knew in my heart when it was time for Lambie to go to sleepy. He had continually made improvements, albeit I didn’t realize and overfed him the one day, as when they don’t eat, you should only give them one to two tablespoons of food per couple of hours (your vet should advise you on this). He was so sick the next day and I realized that because I was so happy he was eating, he ate too much in one sitting. Anyways, beyond that one major setback, Lambie continually made improvements until the day when I knew in my heart it was is time to go. He reverted back to pure liquid diarrhea, and had to go out every couple of hours and each time he would squat in about five different locations outside and each time had a little bit of diarrhea. He was also walking as if he had arthritis, and I could tell his butt was very sore. People should help soothe their dog by putting Penaten cream on them if they are having lots of diarrhea as it is painful. Lambie was also shaking continually, whereas he hadn’t before. His gums and tongue turned a pale colour and his breathing was laboured. I knew my baby had fought and fought hard but it was time to put him out of misery. The disease overcame him and his pale gums and tongue were indicative of something else (he wasn’t anemic as the vet had done a red blood count the day before on him). The vet came over and Lambie slept in my arms in his home, not even stirring when they gave him the sedative and then the last shot. It was very peaceful. He died at the age of 15 on December 9th. I tell this story because it was a difficult experience but I am very grateful for OVC in Guelph, as I have heard people travel all across Canada, even from Newfoundland and bring their animals to the clinic. I hope this helps. Lambie was in successful remission for ten months due to God’s grace and the medications he was on. He was active and enjoyed long walks up until two weeks before he passed away. I have read some controversial posts about chicken on here but Lambie who always had a sensitive stomach was fine with white chicken breast. I hope this is helpful to those going through a similar situation.

  • Claudia

    Wow, all heart-breaking stories. Well my baby is not my pet, but my son with this horrific diagnosis. He is now 11 years old & we’ve been battling this for years. The vets and pet owners seem to know more about it than the pediatricians. I have honestly learned the most from the veterinary medicine than medical literature. What works in dogs, also works in people. We use an elemental formula, and very little real food, a ton of nutritional supplements and he is on and off prednisone. Its draining. But on an elemental formula he started to gain weight, albumen normalized and he put on some muscle mass. Adding back solid food usually makes him sick in the end. Its just tough re: quality of life & restricted diet. All things considered, we have gotten him to a very healthy state, but can’t imagine he’ll keep this diet up as an adolescent. Very few people understand because few have ever even heard of this before…unless they know someone whose dog has it.

    • linda_harris@att.net

      Yes I read it occurs in humans. You do have the advantage of communication with the patient.

      My best suggestion is one of the hospitals working with the canine version vs. a veterinary hospital and establishing a relationship with that medical staff. They may also be in a position for research funding.

      I wish your family the best. I just had stomach surgery requiring a strict diet. Apart from nearly dying, I can empathize with the difficulty of being strict about what goes into my stomach. Now I feel like my dog, Gabe,whom we have been fortunate to stabilize since October of 2012 to normal levels and weight. But, he is a great patient and we diligently home cook and use Houston’s Gulf Coast Veterinary Hospital. Dr. Davenport.

      Feel free to write.

      Linda

    • Sally's Momma

      Wow! Claudia, I’m praying for your son and your family… I didn’t realize humans could suffer from this terrible disease as well 🙁 Stay strong! xo
      Karen

    • Liz

      Hello,

      I am sorry to hear this about your son. In my research for my dog I found a blog by a women who also has this disease. She is very knowledgeable. Check out this website/blog.
      http://www.a-fat-chance.blogspot.com/

      I hope this helps.

      Liz

  • Jill Jones

    Hi, Claudia – My heart breaks for you and your son. When my dog was suffering from this disease, I kept wondering what a parent would do that had a child with this disease. In fact, I said that very thing to the veterinarian. We both just shook our heads and said how unbelievably hard it would be. It was beyond anything I could possibly imagine. So very difficult. I will keep your son in my thoughts and prayers. I am so happy to hear that his health has improved. All the best to you. -Jill

  • Sue

    My thoughts are with you. My dog was my son.

  • Bradi

    Hello, all,

    I am so thankful that I happened to come across this website. Our little yorkie, Izzy, is a 5 year old female, and was just diagnosed last week with lymphangiectasia. The antibiotics and Prednisone have reduced the fluid in her belly, but now she is losing weight so rapidly that we don’t quite know what to do. She is typically only 5 lbs., so she doesn’t have much weight to lose. Our vet, as wonderful as she is, has never seen a case of lymphangiectasia. We have the Royal Canin low fat GI food being express shipped to our home. Izzy used to be the most spunky little dog, and now we can tell she is in pain and wants nothing more than to lie around all day. My daughter is an only child, and Izzy is her everything. It breaks my heart to think see this horrible illness take over. Any suggestions to put weight on rapidly would be appreciated.

    • Linda Lewellen

      Yikes! Our Gabe is 6lbs. Please no commercial food if possible.

      Try cooking some tilapia (you can find it frozen.) In boiling pan of h20 and it will keep 2 to 3 days. Put half tsp canola oil and tsp ID vitamin powder for canines ordered off website Balance ID. Also
      2 tbsns of inside of cooked sweet potatoe.

      It really does not take much time. Made all the difference.
      Linda_harris@att.net if I can help. Good luck.

      Gabe gets Pred. B12. Flagyl.

      It is now 15 months and he has gained 1/2 lb.
      Linda

    • Daniel Garcia

      Any changes?

      • Linda Lewellen

        You need a good vet and blood work.
        Possibly b12 shots.
        Throw the cans away.
        Cook tilapia in h20 sauce pan with Balance IT from web for nutrition. Add 1 tspsn canola oil.
        2tblspns baked sw potato.
        Feed 2x daily. Good luck.Linda

  • Sue

    Even though he is not here, I still feel him walking with me everyday, You just can’t get over them. We have 2 new dogs but it still isn’t the same.

  • Jeri

    I have read many of the posts and I have a question. During all these treatments are any dogs back to being happy? I have a 6 1/2 year old mini schnauzer who has been recently diagnosed and he is so sad. It is breaking my heart. I am following everything the vet tells me to do. He is such a sweet, loving little guy. I miss my happy Wyatt. I want to do what I can to bring him back to who he was and after reading many of the posts I am doubtful it will happen. Is there hope?

  • Dan

    Our little cockapoo passed away yesterday. She got sick three weeks ago, and saw a vet who advised that she just needed some Imodium for her diarrhea. A week later she was showing signs of weight loss but her diarrhea was under control. Then early in the morning she had convulsions and collapsed. The emergency clinic we brought her to stabilized her and treated her with if fluids and a dewormer and sent her home with us. When we picked her up she had fluid pockets under her skin n her tummy, chest and back legs and we took her to a better clinic because we were sure the emergency clinic missed the diagnosis, on the drive to the clinic she was throwing up and had bad diarrhea. The new clinic got a positive test for pancreatitis and treated her accordingly but then her belly swelled way up. We took our baby to a specialist in Toronto for an ultrasound and endoscopic biopsy. He sent her home the next day with a prescription for prednisone and told us to keep feeding her the hypoallergenic formula (she has always needed due to itchy skin and chronic paw licking) until he had the test results. Three days later at the end of the day we got a call that the diagnosis was lymphangiactesia and to switch her food to a vet formula that was low fat and high fibre. We had an appointment to have her blood levels checked again in two days since when this all started her albumin was unreadable by the machine but improved before her biopsy. That night she got watery diarrhea but the vet said bring her in in the morning. By morning my baby has snuffing and gagging, an hour later when we we about to head to the vet she started vomiting and her belly was noticibly bigger. By the time we reached the vet, her lungs were filling with fluid and they could barely find a vein, the vet said her lungs were full of fluid and she was having a lot of difficulty breathing. We said our goodbyes and I held her in my arms as she passed away. The specialist said he rarely sees this disease progress so fast or respond so poorly to treatment. Daisy was nine and a half yesterday and passed away in my arms at noon. She suffered so terribly and we tried everything we could in such a short period of time. Three weeks ago she was playing in the sand and water with us at our cottage. This page and the information here gave us guarded hope for her future, thank you.

    • Annie

      I’m so so sorry for your loss. Your post brought tears to my eyes and I hope soon thinking of your pup will bring you joy instead of sadness. We lost our girl to lymphangiectasia a few weeks ago. She fought for 2.5 years but the last 6 months of her life were hard. But we were prepared. I’m so sorry that for you it struck with such quickness. I can’t imagine. Our thoughts are with you!

    • Linda Lewellen

      My love and sympathy. We are never ready and we are not to blame

      I am certain you did all you could and had a loving home. Use your memories give safe haven for another fur member of your home when you are ready.

      Sympathies from our family and my dearest Gabriel, still battling.
      Linda

      • Dan

        Thank you. I pray for the best for your Gabriel and family. Until We are ready, my wife and I will walk dogs for our local shelter in memory of our Daisy.

    • Lori

      My heart goes out to you and your family Dan. Your little Daisy’s story was heart wrenching. You did your best in trying to help your little fur baby. I am so sorry for your loss.

      • Linda

        So so sad. I have 6 little ones and one with lymphangastacia. The loss of any of them would bring me to my knees in tears.

        I have lost dogs in my lifetime. At the right time, honor your sweet one by bringing another darling into your loving home.

        Lina

  • Daniel Garcia

    I recently adopted a 11 yr old yorkie that has the same issues but I did not find out until about a 2 weeks after, I was only told she had major food allergies but not to this extent, ever since I picked her up she always looks for me, follows me and gives me sad eyes when I leave for work, its as if I owned her since she was a baby but I have only owned her for about 3 weeks, her previous owner fortunately provided medical records she suffers from hypoproteinenemia secondary to severe enteritis, lymphangiectasia and IBD, learning to cope with this is tough but Prissie found her forever home and I wont give up until she improves, she came to my home from a foster home without a bloated stomach so I assume they didn’t care for her properly.. any help or suggestions will be appreciated, she is on prednisone and food wise Royal Canin P/R kibble and same can since she has dental issues

  • Kayla

    This is a great post. My 7-yr-old pug was recently diagnosed with lymphangiectasia by UC Davis 5 months ago. About a year ago my pug began kicking his back legs out and I thought it might
    be neurological related. These weird leg kicks became more frequent and he also began throwing up nearly every day. Davis did a nuero exam but found nothing. They did blood work and an ultra sound and that’s when they noticed he had early stages of lymphangiectasia. They sent me home with directions to cook him chicken and rice. In the course of a year my pug has lost about 4 lbs and struggled with bouts of diarrhea that we try to control via diet. The doctors believe his odd leg kicks are due to stomach cramping; has anyone else experienced this kind of behavior? We now work with a nutritionalist who has me cooking chicken, rice, lentils, broccoli, zucchini, and an assortment of vitamins to keep him healthy. He hasn’t thrown up nearly as much with this diet. He still does the leg kick about once a week- anyone have any idea? Oh, we also have acupuncture done once a month of him and that’s done wonders for him.

  • Cheryl P

    Oh, thank God I found this website. My dog hasn’t been diagnosed yet — biopsy might be later this week, but I’m thinking this could be what she has. It is so very helpful. I will stay strong and NOT give her treats (it’s so hard because she’s lost so much weight).

  • Liz

    I used to give my dog Chex cereal. It is low fat and just rice. It kept weight on him

    • Kayla

      I’m so sorry to hear about Farley. It is heartbreaking. Just know Farley is with you.

      Cheryl-I know how frustrating it is to not know what is happening.. we struggled for a year to get a diagnosis from UC Davis. They put him on a prescription diet called gastrointestinal by Royal Canin. I’m not the biggest fan of commercial dog food but this truly has been our saving grace. Our dog lost a lot of weight and we tried home cooked meals for a while but he got way better on the prescription food. Whatever your vet finds, I hope it goes well for you.

      • Farley's Mum (Patricia)

        Thank you both Kayla and Linda. It is the most heartbreaking thing we do to say goodbye to our beloved ones.

        • Kayla

          Hi Farley’s mom. Yes, it is. Our pug is the world to us. I can’t imagine life without him. I am so sad for you but Linda said it best, they are at peace and waiting for us. Lots of love to you.

      • Sasha's Mom

        Thank you, Kayla. Sasha hasn’t had diarrhea in two weeks, a milestone! But her weakness is simply terrible. Although we’re weaning her from Prednisolone and giving her Budesonide, she is absolutely weak, seeming to get worse, not better, having trouble standing up from a laying down position, falling, lack of coordination. So, we’re off the vet for the bloodwork check and also a manual check just to make sure the weakness doesn’t stem from yet another problem. We’re both exhausted. This site is my lifeline.

  • Liz

    I meant Chex cereal

    • Farley's Mum (Patricia)

      After a very brave fight through many terrible setbacks the last few months, I am devastated to say that Farley, my best bud has said “enough, let me go” and so with a volume of tears, I have. Farewell my loyal and loving companion; you never failed me. I love you.

  • Amber

    Our pug was diagnosed 4 weeks ago, we started treatment with steriods and chemo pills. He was doing amazing then crashed on sunday. He barely had a blood pressure to read, his stool was watery and bloody and lethargic. He ate that morning and was throwing up all day and the water stool started that night. He’s been in the ER for three days. They cannot find out what’s wrong. His fever went down, his stool is just seeping out of his rear and he will not eat or drink. I am at a loss of what to do. The vet wants to keep him for another 24 hours and then call it quits if he’s not better.

    I just dont know what to do.

    • Michelle

      Amber- I am so so sorry. I also have a pug who was diagnosed (it took a year) but UC Davis was finally able to give a diagnosis via an ultra sound (luckily he didn’t need a biopsy). How quickly did this come on? What was he eating? It sounds more than lymphangiectasia and it’s surprising they have him on chemo pills. What are they doing to help him? I am so sorry for you.

    • Farley's Mum (Patricia)

      Amber, I am so sorry to hear this. I had to put my beloved Cockapoo’s troubles down 2 weeks ago. Your pug’s symptoms are very similar to those of my dog just before the end. My vet thought he might have had a lymphoma (cancer) as well as CIL. If your baby doesn’t come around, please know that my thoughts are with you and remember all the love you received from your dog and that he will be at peace.

  • […] First, please read Canine Intestinal Lymphangiectasia 101 . […]

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  • elyse Darby's mom

    Welcome blueillume, this site has been a godsend.
    Louie’s mom has done a terrific job. My little boy Darby is going through the ups and downs. Just had his body cavity tapped.(a must if breathing issues).They got out 200 Cc’s of fluild. ALT is still high over 1000, human albumin is low. Even with steroids and liver meds we can’t get a break. Weighs about 7 .8 pounds now, from start 14lbs. And I just refreshed myself on the food and the primary or secondary lymphangiectasia. I am feeling chicken is the problem. He can’t eat the Royal Canin lowf, he’s much better with the tilapia. Going to rework his food.

  • Lori

    My nearly 14 year old Rat Terrier, Bandit, was diagnosed with Lymphangeictasia in 2007 by Loomis Basin Vet near Sacramento. He has been stable for SEVERAL years. He is currently on 1/4 tablet of 5mg Prednisone every day (every other day until recently, 1/2 tablet of a 10mg antacid, 1 level tsp of Tylosin and 1 tablet Denamarin and is on Royal Canin Fish and Potato in both dry and wet form. He weighs about 15 lbs. At initial diagnosis he was just barely 10 lbs and very, very thin. The disease came on rapidly. When he does have stomach upsets, I put him on boiled chicken and white rice but have found that he much prefers boiled chicken and potato.

    Hang in there and best of luck to all. Your little fur babies deserve the best.

  • Elyse

    Lori Bandits mom- that is amazing he has done so well. Even gained weight. Just got my vets to approve IT Balance. Just so everyone knows get exactly the right diagnosis when getting vet approval. My vet wanted HypoAllergic/IBD along with Severe low fat Lymp., my dogs issues. I did not click the Hypo, so now need new approval to order. My dog weighted 14 lbs and now is 8.7lbs. Hope I get to feed him bag food one day and he gains some weight back. They shaved him 4 months ago for test, he still has not grown any of his fur back.

    • Lori

      Yes, we are very grateful to Dr. Spann and now Dr. M. Smith of Loomis Basin Vet Hospital. Dr. Smith is wonderful and I believe, is the head of internal medicince for those of you near the Sacramento, CA area. Bandit did initially go through having edema (fluid) and every other symptom, but do not give up! Insist on a full scale blood test. This often reveals much of what is needed for the vet to make a diagnosis.

      During your pets’ initial diagnosis, refrain from giving them any unapproved treats and food as these will only upset your pups tummy even more. I did mention giving Bandit boiled chicken and rice/potato recently since he had a flare up, but I believe Tilapia fish with baked potato would have been better! Bandit’s vet did approve baked potato with the boiled chicken during his flare up but he is now back on his Royal Canin fish and potato. I will actually bake him more potatoes for his treats from now on since he loves them!!!

      I wish you the very best Elyse with your little Darby! What breed is your little guy? U*.*U lori

  • Lori

    BTW, even the Royal Canin fish and potato can be too rich when there is a flare up and the reason why Bandit was on boiled chicken and rice for 2 weeks. I believe Tilapia and potato/rice would be a better choice until the diarrhea and vomiting are under control. With Bandit’s recent flare up, he was having vomiting and diarrhea for 3 days but become more stable once I put him on the boiled chicken/rice/potato the next day he became ill until he saw his vet. The only change the vet made (after $350 in tests) was increasing his Prednisone from 1/4 tablet every other day to 1/2 tablet daily. After 1 week we decreased the Prednisone to 1/4 tablet every day once his stools hardened up and he was back to himself again.

  • Elyse

    Darby is a little red dachshund. He will be 6 Yrs. old in a few months. Too young to be so sick. He is just eating tilapia and potatoes. They just added another medicine for possibly and infection. For people who read this blog and don’t know…if your dog is having trouble breathing he probably needs to be tapped. That is when they take a needle and remove fluid. If you don’t have that done they will eventually not be able to breathe. Lori I might of missed what kind of dog you have?

    • Lori

      Bandit is a Rat Terrier. He first became ill around the age of 7. Bandit also needed to have fluid removed, it seems to be a common problem but as you can see, he is still with me and doing fine after nearly 7 years. I do hope your vet can get Darby’s illness under control, that is everyone’s little fur baby’s illness under control. It is so stressful and heart wrenching when our little fur kids get sick. FYI, if anyone needs to purchase Denamarin for the liver, I purchase Bandit’s off of Amazon.

      All the best to everyone! Bandit and family

  • Tami

    Whoever is overseeing this site, can you please contact me via email at madison4121973@aol.com. I have a dog with this disease for almost 8 years, she was diagnosed formally through biopsy years ago and she is going on 12 years old. There is information posted on this site that is contrary to what has worked for my dog as well as well as many dogs my vet is now treating since we came up with a working protocol.

    Thanks so much, just want to make sure all information is considered that has helped dogs with this disease and that options are not being ruled out that did save my dogs life.

    My best,
    Tami

    • Elyse Darby's mom

      Tami, Please share what you know that has been successful. Thank You

    • HI Tami,

      One of the basic tenets of this site, which you will see over and over again, is that all of our CIL dogs are different and what works for one will not work for all. Please share with us what has worked for your dog so that we can add that to the knowledge pool. I have received many, many comments over the years about how the information here has saved many lives so am hesitant to change it, but we welcome new information about additional options.

      Our MO here is, if one thing doesn’t work, try something else. Please share what has helped your dog so that we have another thing to try.

      Thanks,

      Louie’s mom

  • Louies Mom

    We have a new space for our CIL discussions! Please join us at http://louiethelovemuffin.com/forum/.
    I hope everyone who participates here on a regular basis will take the time to join so that we can stand as a united force helping new owners cope with this disease.

    Thanks for being here!

    • Laura Reidenbach

      Please respond to my inquiries regarding Spirulina. Owen’s specialist could not provide me with any information. I understand it is a concentrated form of protein but I am concerned about the high Vitamin A content. We have nothing to lose at this point as the drugs and diet do not seem to be working any longer and he is steadily losing weight with mud pie with small amounts of diarrhea every day.

      • Hi Laura,

        I’m not on here every day anymore and most of our discussions now are taking place on the forum. Sorry it took me so long to see this post!

        The difference in amount has to do with how much protein is in each food by percentage. Spirulina is 60-70% protein whereas meat can be as low as 15%. For Louie, because he was small, I looked at how much protein he had been getting in his regular diet and then did some quick calculations. I’m not a “measurer” and once I had a ballpark I tweaked things based on how much energy he seemed to have from his diet. Hope this helps.

  • Bryan Smith

    I have a 3 year old greyhound with Lymphangiectasia that I have had for 4 months. I have had him on a low fat diet (8%) and given him 1500 mg of Rutin daily with food. I also give him 1/2 cup of cooked rice with each meal to help with the diarrhea. I walk him 2 to 3 miles twice daily. It is working! He is more active than my 7 year old female healthy greyhound. His stool is of normal texture with a second dropping 10 minutes after the first that is pudding consistency. A result of the rice. He runs short distances and plays with the other dog. He is skinny (low body fat), but so are most greyhounds. This is one happy active dog.

    • Linda

      Great.

      No disrespect and glad it is working.

      To me, 8% in this situation is high fat….anything lower might be better still. My Gabe is on tilapia at 1% for the last 2.5 years.

      Just my opinion and his doctors so I pass it along.

      Balance IT for nutrition, B12, Flagyl and formerly prednisone as well.

      Good luck.

      Warmly,
      Linda, currently at 7 Yorkies.

  • Bryan Smith

    I received your message but it was incomplete. Please try again

  • Laura Reidenbach

    Hi, I’m Laura, mother of a cute freckle-faced cocker named Owen. Owen is 7 years old and has been battling lymphangiectasia for one year and four months. He is a happy little guy who has recently been on a steady decline. His normal weight is 22 pounds as he was always very lean and very active. His weight today is 17.4 lbs. He is on a host of drugs prescribed by a specialist and a strict diet of tilapia, rice, pumpkin, apple, bananas, and egg whites. He has become very finicky and his stools are very loose and watery. He is on prednisolone, tylosin, baytril, metronidazole, leukerin, mycophenolate, pepcid AC, clopidogrel. The specialist claims she can do no more. Despite this prognosis, Owen is fighting hard and I am trying to discover more options. For Louie’s Mom: I am interested in hearing more about spirulina, as a source of protein. I understand that Louie only needed 1/4 teaspoon each day, but when I look at the number of grams on the spirulina powder labels, it seems that it would take a lot more powder to meet his protein requirements. Please let me know more including the brand you used for Louie. Thank you. ( I have been visiting your website for many months and getting a lot of helpful information.)

    • Lori

      Hi there, I am wondering if apple should be included in his diet? See this link: http://www.livestrong.com/article/426559-do-apples-or-apple-juice-cause-diarrhea/ I just know that apples give my husband loose stools. Pumpkin seems ok. I’m not a vet by any means. My boy has been on Royal Canin Fish and potato wet food. He developed lymphangeictasia when he was around 7 yrs old and he is now 14 years. He does on occasion have bouts of diarrhea I then put him on boiled potatoes and tilapia or potatoes/white rice and boiled chicken (his favorite). My boy Bandit is on 1/4 tablet every other day (depends on whether he has diarrhea) of prednisone, 1 level tsp tylosin, 1 denamarin every day, and 1/2 tablet of a 10 mg tablet every day (or 5mg). With his previous internist he was on much more meds.

      I wish you the very best with your fur baby. lori

      • Laura Reidenbach

        Thanks Lori, we are watching him closely. His disease seems to have progressed, with lymph fluid being released as diarrhea almost daily. We are hoping it’s another flare-up and that it will subside. Meanwhile is on a very bland low fat diet and tons of medications Today he really pepped up after his oatmeal and rice. Happy to hear your Bandit has been doing well.

  • Lori

    Oops, the 1/2 tablet of a 10mg tablet is for the Pepcid AC. I actually use a generic antacid.

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  • Louies Mom

    Please join us at our new interactive home on Facebook. We can be found at https://www.facebook.com/groups/lymphiedogs/

    Change happens. Let’s keep this community going!

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